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MEA chairman Neil Riley unpicks a central thread in the PACE Trial

Discussion in 'General ME/CFS News' started by Firestormm, Feb 26, 2014.

  1. Firestormm

    Firestormm Guest

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    Cornwall England
    Published online: 26 February 2014
    MEA Facebook: https://www.facebook.com/permalink....46122749&id=171411469583186&notif_t=notify_me

    MEA Website: http://www.meassociation.org.uk/201...al-thread-in-the-pace-trial-16-february-2014/
     
  2. Bob

    Bob

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    England (south coast)
    For those outside the UK, the 'MEA' is the 'ME Association', which is perhaps the second largest UK national patient support organisation, in terms of paid members. (I'm not certain about that, but it is a high-profile organisation.)
     
    Nielk, Ren and Min like this.
  3. SOC

    SOC

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    Too bad this article is only preaching to the choir. It would be truly satisfying to see this article in a mainstream publication.
     
  4. Dolphin

    Dolphin Senior Member

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  5. Purple

    Purple Bundle of purpliness

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    It's good for PWME to read this too (not all are aware about the controversy around the PACE trial) - they can then be better informed and be able to articulate this to e.g. doctors who want to send them for GET/CBT. :)
     
    Sean, Nielk, Firestormm and 5 others like this.
  6. Snow Leopard

    Snow Leopard Hibernating

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    This comment, is only what, 3 years late?

    It might have been useful back in 2011 before they tried to pull the same bait-and-switch again in the 'recovery' paper.
     
    Min likes this.
  7. Min

    Min Guest

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    In view of Mr Riley's comments, it is most surprising that the MEA (alongside AfME) continue to happily work alongside Prof White of the PACE trial as members of the CFS ME Research Collaberative. Dr Crawley of the SMILE trial of the Lightning Process on children is also a member.


    Invest in ME will have nothing to do with the Collaborative, who seem to be achieving nothing.
     
  8. alex3619

    alex3619 Senior Member

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    These comments were made years ago in various places by various people. Its really good to see it still being put out there though. We need the message reinforced again and again until it reaches the point the PACE papers are retracted, or that people are so aware of the serious flaws that they are discredited.

    Indeed, redefinition of terms including "recovery" are one of the reasons I started writing my book.
     
  9. Dolphin

    Dolphin Senior Member

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    (In case anyone missed it)
    The journalist, David Tuller DrPH, on Wednesday posted a substantial piece on the PACE Trial:

    TRIAL BY ERROR: The Troubling Case of the PACE Chronic Fatigue Syndrome Study
    http://www.virology.ws/2015/10/21/trial-by-error-i/

    There's an introduction and summary at the start if you don't want to take on the whole thing.

    It's being discussed in this PR thread:
    http://forums.phoenixrising.me/inde...he-pace-chronic-fatigue-syndrome-study.40664/

    ME Network have also posted their own summary piece:
    http://www.meaction.net/2015/10/21/david-tuller-tears-apart-pace-trial/

    Part two of David Tuller's piece is at:
    http://www.virology.ws/2015/10/22/trial-by-error-ii/

    Cort Johnson has done one of his easy-to-read pieces on it here:

    http://www.cortjohnson.org/blog/201...-chronic-fatigue-syndrome-pace-cbt-get-trial/
     

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