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ME vs "Autoimmune Encephalitis"

Discussion in 'General ME/CFS Discussion' started by Ren, Feb 15, 2014.

  1. Ren

    Ren Primum Non Nocere

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    Potemkin Village
    Has anyone heard of autoimmune encephalitis and/or understand how this condition is distingished from ME. The FAQ page: https://aealliance.org/faq/ Thanks!
    vli, rosie26 and Tito like this.
  2. Martial

    Martial Senior Member

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    Hmm never heard of that before, I have had a pretty bad case of chronic encephalitis from my lyme disease though, complete with hypo perfusion..

    It is really intense stuff sometimes thats for sure!
    vli likes this.
  3. Nielk

    Nielk

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  4. TigerLilea

    TigerLilea Senior Member

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    My sister had encephalitis and ended up in ICU after having several seizures. I don't think you can compare this to ME.
  5. SOC

    SOC Moderator and Senior Member

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    If there is encephalitis in ME, I don't think it is thought to be severe acute encephalitis as experienced by your sister. I think the thought is there might be subacute encephalitis, which would still cause problems, but not the same ones as acute encephalitis. At the same time, I don't think there's clear evidence of even subacute encephalitis in ME/CFS, but I doubt there's been any good research on the topic either way.
  6. Martial

    Martial Senior Member

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    A spect MRI scan would show any hypo perfusion consisent of possible mild chronic encephalitis..

    Also yeah Acute encephalitis is a completely different danger level, and issue then sub acute inflammation and minor hypo perfusion..

    I hope your sister is doing well now @TigerLilea
  7. Daffodil

    Daffodil Senior Member

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    I think a functional SPECT scan is better. I had horrible brain fog/swelling feeling and my regular SPECT scan was normal!
  8. Aerose91

    Aerose91 Senior Member

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    I got ME from encephalitis. The acute phase was everything you can think encephalitis could be, then once that passed things changed as the ME became predominant. However, I still occasionally get seizure like episodes and still have motor function/proprioception problems that came from the encephalitis.

    There are various types of autoimmune encephalitis but as stated earlier, ME is more of a subactute. In autopsies they have done on ME patients they have found capillary inflammation in the brain stem and base of the brain.
    vli and merylg like this.

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