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Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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ME vs "Autoimmune Encephalitis"

Discussion in 'General ME/CFS Discussion' started by Ren, Feb 15, 2014.

  1. Ren

    Ren Primum Non Nocere

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    Has anyone heard of autoimmune encephalitis and/or understand how this condition is distingished from ME. The FAQ page: https://aealliance.org/faq/ Thanks!
     
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  2. Martial

    Martial Senior Member

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    Hmm never heard of that before, I have had a pretty bad case of chronic encephalitis from my lyme disease though, complete with hypo perfusion..

    It is really intense stuff sometimes thats for sure!
     
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  3. Nielk

    Nielk

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  4. TigerLilea

    TigerLilea Senior Member

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    My sister had encephalitis and ended up in ICU after having several seizures. I don't think you can compare this to ME.
     
  5. SOC

    SOC Senior Member

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    If there is encephalitis in ME, I don't think it is thought to be severe acute encephalitis as experienced by your sister. I think the thought is there might be subacute encephalitis, which would still cause problems, but not the same ones as acute encephalitis. At the same time, I don't think there's clear evidence of even subacute encephalitis in ME/CFS, but I doubt there's been any good research on the topic either way.
     
  6. Martial

    Martial Senior Member

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    A spect MRI scan would show any hypo perfusion consisent of possible mild chronic encephalitis..

    Also yeah Acute encephalitis is a completely different danger level, and issue then sub acute inflammation and minor hypo perfusion..

    I hope your sister is doing well now @TigerLilea
     
  7. Daffodil

    Daffodil Senior Member

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    I think a functional SPECT scan is better. I had horrible brain fog/swelling feeling and my regular SPECT scan was normal!
     
  8. Aerose91

    Aerose91 Senior Member

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    I got ME from encephalitis. The acute phase was everything you can think encephalitis could be, then once that passed things changed as the ME became predominant. However, I still occasionally get seizure like episodes and still have motor function/proprioception problems that came from the encephalitis.

    There are various types of autoimmune encephalitis but as stated earlier, ME is more of a subactute. In autopsies they have done on ME patients they have found capillary inflammation in the brain stem and base of the brain.
     
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