Agents for Change: The 10th Invest in ME International ME Conference, 2015 - Part 1
The 10th Invest in ME International ME Conference (IIMEC10) was held, as usual, in the Lecture Theatre at 1 Birdcage Walk in Westminster on May 29th, 2015.
Discuss the article on the Forums.

ME vs "Autoimmune Encephalitis"

Discussion in 'General ME/CFS Discussion' started by Ren, Feb 15, 2014.

  1. Ren

    Ren .

    Messages:
    385
    Likes:
    661
    Has anyone heard of autoimmune encephalitis and/or understand how this condition is distingished from ME. The FAQ page: https://aealliance.org/faq/ Thanks!
     
    vli, rosie26 and Tito like this.
  2. Martial

    Martial Senior Member

    Messages:
    1,241
    Likes:
    980
    Ventura, CA
    Hmm never heard of that before, I have had a pretty bad case of chronic encephalitis from my lyme disease though, complete with hypo perfusion..

    It is really intense stuff sometimes thats for sure!
     
    vli likes this.
  3. Nielk

    Nielk

    Messages:
    6,183
    Likes:
    8,145
    Queens, NY
  4. TigerLilea

    TigerLilea Senior Member

    Messages:
    205
    Likes:
    289
    Vancouver, British Columbia
    My sister had encephalitis and ended up in ICU after having several seizures. I don't think you can compare this to ME.
     
  5. SOC

    SOC Senior Member

    Messages:
    6,760
    Likes:
    12,010
    USA
    If there is encephalitis in ME, I don't think it is thought to be severe acute encephalitis as experienced by your sister. I think the thought is there might be subacute encephalitis, which would still cause problems, but not the same ones as acute encephalitis. At the same time, I don't think there's clear evidence of even subacute encephalitis in ME/CFS, but I doubt there's been any good research on the topic either way.
     
  6. Martial

    Martial Senior Member

    Messages:
    1,241
    Likes:
    980
    Ventura, CA
    A spect MRI scan would show any hypo perfusion consisent of possible mild chronic encephalitis..

    Also yeah Acute encephalitis is a completely different danger level, and issue then sub acute inflammation and minor hypo perfusion..

    I hope your sister is doing well now @TigerLilea
     
  7. Daffodil

    Daffodil Senior Member

    Messages:
    3,338
    Likes:
    1,479
    I think a functional SPECT scan is better. I had horrible brain fog/swelling feeling and my regular SPECT scan was normal!
     
  8. Aerose91

    Aerose91 Senior Member

    Messages:
    889
    Likes:
    446
    I got ME from encephalitis. The acute phase was everything you can think encephalitis could be, then once that passed things changed as the ME became predominant. However, I still occasionally get seizure like episodes and still have motor function/proprioception problems that came from the encephalitis.

    There are various types of autoimmune encephalitis but as stated earlier, ME is more of a subactute. In autopsies they have done on ME patients they have found capillary inflammation in the brain stem and base of the brain.
     
    vli and merylg like this.

See more popular forum discussions.

Share This Page