Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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ME on BBC radio 4 Woman's Hour now

Discussion in 'General ME/CFS News' started by Jenny, Mar 16, 2011.

  1. Jenny

    Jenny Senior Member

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  2. Jenny

    Jenny Senior Member

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  3. Esther12

    Esther12 Senior Member

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    Oops... I started another thread.

    My thoughts:

    To be fair... not too bad.

    They didn't hype Pace up too much. Made it clear CBT/GET really weren't that good treatments, returning 30% of patients 'into the normal range of fatigue' compared to 14% without treatmentand ... those figures are likely to be misleading to most of the public, but nowhere near as bad as the way Chalder and White was doing it.

    Still not good, but no outright lies. (I can't believe how low my standards are).

    Also, the general tone of the piece was sympathetic.
     
  4. Esther12

    Esther12 Senior Member

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    Also... why have both Esther Crawley and someone from AYME on? Maybe they wanted a cosy chat, rather than an exploration of any disagreements?
     
  5. Enid

    Enid Senior Member

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    Interesting Jenny thanks (brought my worst times back from 11 years ago). Felt Jenni Murray very genuine - but Esther Crawley too "toeing the party line" to be helpful. Need for research far too long overdue for ME/CFS just glares out. There can be no real "treatment" until the underlying cause is found.
     
  6. Jenny

    Jenny Senior Member

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  7. Enid

    Enid Senior Member

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    Thanks Jenny - will comment too. I was "set" on in A & E (two street collapses) by 3 junior Docs - "we think it's all in your mind" and produced a psychiatrist. Very ill and very nasty experience.
     
  8. Bob

    Bob

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    Here's another link that will take you directly to the section of the program about ME...
    http://www.bbc.co.uk/programmes/p00fpqv5


    This thread is in the XMRV section... I think it should be moved to the General ME/CFS News section, so that everyone can find it easily.
     
  9. Jenny

    Jenny Senior Member

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  10. Kate_UK

    Kate_UK Senior Member

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  11. Enid

    Enid Senior Member

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    Bit of "professional" agitating going on there - switched off. Sad to see the genuine attracts "troublemakers" set on mischief alone. This appears to be a Messageboard not constructive comments on the Jenni Murray programme requested. Nothing better to do. (anything to do with the chap who was bored over a cup of coffee and nearly ended Dr Myhill's career).
     
  12. Kate_UK

    Kate_UK Senior Member

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    Yes, I think it is probably better to send the comments as they requested to Woman's Hour.
     
  13. Enid

    Enid Senior Member

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    Done mine too Kate through the "Comments". We are "coming to light" now.
     

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