ME on BBC radio 4 Woman's Hour now

[Jenny]

On now - will be on iplayer too.

http://www.bbc.co.uk/iplayer/radio/bbc_radio_fourfm/listenlive

Jenny

 

[Jenny]

Arghhhhh....... Esther Crawley saying CBT and exercise work!

Comments to:

http://www.bbc.co.uk/radio4/features/womans-hour/contact-us/

 

[Esther12]

Oops... I started another thread.

My thoughts:

To be fair... not too bad.

They didn't hype Pace up too much. Made it clear CBT/GET really weren't that good treatments, returning 30% of patients 'into the normal range of fatigue' compared to 14% without treatmentand ... those figures are likely to be misleading to most of the public, but nowhere near as bad as the way Chalder and White was doing it.

Still not good, but no outright lies. (I can't believe how low my standards are).

Also, the general tone of the piece was sympathetic.

 

[Esther12]

Also... why have both Esther Crawley and someone from AYME on? Maybe they wanted a cosy chat, rather than an exploration of any disagreements?

 

[Enid]

Interesting Jenny thanks (brought my worst times back from 11 years ago). Felt Jenni Murray very genuine - but Esther Crawley too "toeing the party line" to be helpful. Need for research far too long overdue for ME/CFS just glares out. There can be no real "treatment" until the underlying cause is found.

 

[Jenny]

You can listen to this from this link:

http://www.bbc.co.uk/programmes/b00zf33m?forumid=331851

They are asking for emails about people's experiences of treatment. (The guy whose case they talked about had been sectioned (forcibly admitted to a psychiatric unit) in 2009. Incredible that this is still happening.)

Emails to: http://www.bbc.co.uk/radio4/features/womans-hour/contact-us/

Jenny

 

[Enid]

Thanks Jenny - will comment too. I was "set" on in A & E (two street collapses) by 3 junior Docs - "we think it's all in your mind" and produced a psychiatrist. Very ill and very nasty experience.

 

[Bob]

Here's another link that will take you directly to the section of the program about ME...
http://www.bbc.co.uk/programmes/p00fpqv5


This thread is in the XMRV section... I think it should be moved to the General ME/CFS News section, so that everyone can find it easily.

 

[Jenny]

Thanks Bob for the better link and noticing this was in the wrong section. I've started a new thread with the heading 'Send your treatment experiences' so that people will know they are inviting comments.

http://forums.aboutmecfs.org/showth...xperiences-to-BBC-Radio-4&p=165093#post165093

Jenny

 

[Kate_UK]

Some discussion here http://www.bbc.co.uk/dna/mbradio4/NF2766774?thread=8121398

 

[Enid]

Bit of "professional" agitating going on there - switched off. Sad to see the genuine attracts "troublemakers" set on mischief alone. This appears to be a Messageboard not constructive comments on the Jenni Murray programme requested. Nothing better to do. (anything to do with the chap who was bored over a cup of coffee and nearly ended Dr Myhill's career).

 

[Kate_UK]

Bit of "professional" agitating going on there - switched off. Sad to see the genuine attracts "troublemakers" set on mischief alone. This appears to be a Messageboard not constructive comments on the Jenni Murray programme requested. Nothing better to do I guess.

Yes, I think it is probably better to send the comments as they requested to Woman's Hour.

 

[Enid]

Done mine too Kate through the "Comments". We are "coming to light" now.