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ME Chronic Fatigue Association: Raising funds for research

Discussion in 'Fundraising' started by Ember, Nov 22, 2013.

  1. Ember

    Ember Senior Member

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    Created by Derek Enlander
    January 18, 2013

    [​IMG]

    “Raising funds to provide research in Myalgic Encephalomyelitis Chronic Fatigue Syndrome ME CFS, a debilitating disease that ravages patients and interrupts life, education and careers. The funds will be used to research diagnosis and treatment.”

    Goal: $50,000.00
    $0
    raised by 0 people in 10 months.

    Be the First to Donate!
    [​IMG]


    Select a Reward Level

    Gold - $100: Supplements for ME CFS (18 of 18 left)
    Platinum - $500: Phone consultation with ME CFS Expert and supplements (20 of 20 left)
    Or, Donate a Different Amount
     
    justinreilly and aimossy like this.
  2. aimossy

    aimossy Senior Member

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    oh my memory!
    What is Dr Enlander looking into specifically or will be researching?
    Can you donate from outside USA?:)
     
  3. Ember

    Ember Senior Member

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    There are at least two threads on his clinical trials:

    “Mount Sinai is conducting a study on ME/CFS, to learn more about the immune system and genomic data of patients with ME/CFS:” http://forums.phoenixrising.me/index.php?threads/mt-sinai-recruiting-for-pem-study.20347/

    “Treatment of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome using methylation cycle supplements in a double-blind study:” http://forums.phoenixrising.me/inde...ew-trial-using-methylation-supplements.24397/
     
  4. Ember

    Ember Senior Member

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    When you donate, you're asked to indicate your country after your email address.
     
  5. aimossy

    aimossy Senior Member

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    NZ
  6. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    NYC (& RI)
    Thanks to Beaker for posting the following on another thread. He found out from Dr. Enlander there are two foundations you can donate to. The second is definitely tax-deductible, the first one, beaker thinks is tax-deductible. As Beaker pointed out, the website listed in the first post of the thread may take out a cut. If so, it would be better to donate directly to one of the below. (for example, Jen Brea wrote that kickstarter and amazon payments took 7 - 10% of the total raised for her kickstarter campaign)

    Hopefully, this information can be listed in the first post, so people don't miss it.

    1. Names of Foundations Caron and Derek Enlander Foundation
    2. Contact information Derek Enlander MD
    860 Fifth Avenue
    New York NY 10065
    3. Who to make check out to.
    Derek Enlander MD notation Caron and Derek Enlander Foundation
    4. What is each foundation supporting?
    Medical Research in these specific areas

    Cancer research
    ME/CFS research especially treatment of Chronic Fatigue Syndrome
    Fibromyalgia cause and treatment
    Lymes Disease
    Want to know specifically where the money is going and how it will be used..
    as specified above

    ==============================================
    1. Names of Foundations

    Mount Sinai ME/CFS Center
    Mount Sinai School of Medicine
    c/o Derek Enlander MD
    860 Fifth Avenue
    New York NY 10065
    3. Who to make check out to.
    Mount Sinai ME/CFS Center
    4. What is each foundation supporting?
    Medical Research in these specific areas

    ME/CFS research especially treatment of Chronic Fatigue Syndrome
     
    beaker likes this.
  7. Ember

    Ember Senior Member

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    Terms & Conditions
    Posted by GoFundMe Team
    Apr 01
     

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