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In July (2014) Tymes Trust Director Jane Colby’s Paper entitled 'False Allegations of Child Abuse in Cases of Childhood Myalgic Encephalomyelitis (ME)’ was published in the peer reviewed journal ‘Argument and Critique’.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
NEW CAMPAIGNING BOOKLET 'False Allegations of Child Abuse in Cases of Childhood Myalgic Encephalomyelitis (ME)' at http://www.tymestrust.org/tymespublications.htm
Free printed copies for members, groups, supporters for distribution and campaigning, subject to availability. Ask! Send your details to Tymes Trust via our Contact Us form at http://www.tymestrust.org/contactus.htm
The purpose of this booklet is to make Jane Colby's peer reviewed paper accessible for campaigning purposes. Doctors, schools, family relations, press and media, all need to know what is happening to families and also need to understand that it typically follows the failure of management regimes which families are expected to keep to. Families report that such regimes are unrealistic and do not take account of the true lived experience of the child's illness.
Please read and share the following email Alert from Jane Colby:
CAMPAIGN
In July, my paper 'FALSE ALLEGATIONS OF CHILD ABUSE IN CASES OF CHILDHOOD MYALGIC ENCEPHALOMYELITIS (ME)' was published in the peer reviewed journal Argument and Critique.
Following the paper's favourable reception by the ME community and by others including US paediatrician Dr David Bell, who specialised in ME for many years, Tymes Trust is now inviting you to help distribute a new booklet containing the paper.
You can see the booklet at
www.tymestrust.org/tymespublications.htm
On Monday 13 October, I will be presenting the booklet at a training
session for students entitled 'Understanding ME' at Bishop Grosseteste University, Lincoln. This will be its official launch.
All members of the Trust will shortly receive their printed copy of the
booklet through the post, with a note from our Chair inviting you to help with the campaign.
As you know, 2014 is our 25th Anniversary year. Our theme is FIGHTING INJUSTICE. This paper is a vital tool in spreading knowledge of the injustices faced by many families of children with ME.
TREATMENT INEFFECTIVE OR HARMFUL
The paper in the booklet does not just address false allegations. It also gives a clear, referenced analysis of why exercise treatments and graded programmes of school attendance may often make children worse, as reported to the Trust week in, week out. It examines why such activity management programmes are still being imposed on families despite the frequently reported negative outcomes. And it addresses the difference between ME and CFS, explaining the confusion that has resulted from the adoption of the terms Chronic Fatigue and Chronic Fatigue Syndrome. Full
information about the Trust is included.
So the booklet is a tool with which you can educate your school and your GP, and back up your requests for the type of education and general lifestyle which your child needs and is entitled to, in order to make the best recovery possible whilst still not missing out on a good education.
It is a parent's legal right to choose how to look after their child. If
you want to discuss this, please phone our Advice Line on 0845 003 9002.
TYMES TRUST IS NOW ON FACEBOOK
www.facebook.com/tymestrust
Please visit our new page and Like us! This page has been launched to coincide with our 25th Anniversary year, and will feature reports and other matters.
You can also follow me on Twitter @JaneCColby and follow the Trust
@tymestrust
With all best wishes
Jane
Jane Colby FRSA
Executive Director
The Young ME Sufferers Trust
PO Box 4347, Stock, Essex, CM4 9TE
www.tymestrust.org
Tel: 0845 003 9002
Holder of The Queen's Award for Voluntary Service:
The MBE for Volunteer Groups
======
READ ALL PREVIOUS ALERTS AND SUBSCRIBE TO MY LIST AT www.tymestrust.org
To unsubscribe, send an email via the website Contact Us form.
======
You are welcome to redistribute or reprint this email without
seeking our permission provided: 1) you do not abbreviate, add
to, or change the text in any way; 2) the authorship information
is retained; and 3) www.tymestrust.org is credited as the source.
Jane Colby is Executive Director of The Young ME Sufferers Trust.
She was a Headteacher for nine years, a member of the government
Chief Medical Officer's Working Group on CFS/ME and co-authored
ME/CFS In UK Schools, the largest epidemiological study of ME to
date. She is a life member of the National Association of Head Teachers and a Fellow of the Royal Society of Arts.
Copyright (c) 2014 The Young ME Sufferers Trust
.
.
In July (2014) Tymes Trust Director Jane Colby’s Paper entitled 'False Allegations of Child Abuse in Cases of Childhood Myalgic Encephalomyelitis (ME)’ was published in the peer reviewed journal ‘Argument and Critique’.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
NEW CAMPAIGNING BOOKLET 'False Allegations of Child Abuse in Cases of Childhood Myalgic Encephalomyelitis (ME)' at http://www.tymestrust.org/tymespublications.htm
Free printed copies for members, groups, supporters for distribution and campaigning, subject to availability. Ask! Send your details to Tymes Trust via our Contact Us form at http://www.tymestrust.org/contactus.htm
The purpose of this booklet is to make Jane Colby's peer reviewed paper accessible for campaigning purposes. Doctors, schools, family relations, press and media, all need to know what is happening to families and also need to understand that it typically follows the failure of management regimes which families are expected to keep to. Families report that such regimes are unrealistic and do not take account of the true lived experience of the child's illness.
Please read and share the following email Alert from Jane Colby:
CAMPAIGN
In July, my paper 'FALSE ALLEGATIONS OF CHILD ABUSE IN CASES OF CHILDHOOD MYALGIC ENCEPHALOMYELITIS (ME)' was published in the peer reviewed journal Argument and Critique.
Following the paper's favourable reception by the ME community and by others including US paediatrician Dr David Bell, who specialised in ME for many years, Tymes Trust is now inviting you to help distribute a new booklet containing the paper.
You can see the booklet at
www.tymestrust.org/tymespublications.htm
On Monday 13 October, I will be presenting the booklet at a training
session for students entitled 'Understanding ME' at Bishop Grosseteste University, Lincoln. This will be its official launch.
All members of the Trust will shortly receive their printed copy of the
booklet through the post, with a note from our Chair inviting you to help with the campaign.
As you know, 2014 is our 25th Anniversary year. Our theme is FIGHTING INJUSTICE. This paper is a vital tool in spreading knowledge of the injustices faced by many families of children with ME.
TREATMENT INEFFECTIVE OR HARMFUL
The paper in the booklet does not just address false allegations. It also gives a clear, referenced analysis of why exercise treatments and graded programmes of school attendance may often make children worse, as reported to the Trust week in, week out. It examines why such activity management programmes are still being imposed on families despite the frequently reported negative outcomes. And it addresses the difference between ME and CFS, explaining the confusion that has resulted from the adoption of the terms Chronic Fatigue and Chronic Fatigue Syndrome. Full
information about the Trust is included.
So the booklet is a tool with which you can educate your school and your GP, and back up your requests for the type of education and general lifestyle which your child needs and is entitled to, in order to make the best recovery possible whilst still not missing out on a good education.
It is a parent's legal right to choose how to look after their child. If
you want to discuss this, please phone our Advice Line on 0845 003 9002.
TYMES TRUST IS NOW ON FACEBOOK
www.facebook.com/tymestrust
Please visit our new page and Like us! This page has been launched to coincide with our 25th Anniversary year, and will feature reports and other matters.
You can also follow me on Twitter @JaneCColby and follow the Trust
@tymestrust
With all best wishes
Jane
Jane Colby FRSA
Executive Director
The Young ME Sufferers Trust
PO Box 4347, Stock, Essex, CM4 9TE
www.tymestrust.org
Tel: 0845 003 9002
Holder of The Queen's Award for Voluntary Service:
The MBE for Volunteer Groups
======
READ ALL PREVIOUS ALERTS AND SUBSCRIBE TO MY LIST AT www.tymestrust.org
To unsubscribe, send an email via the website Contact Us form.
======
You are welcome to redistribute or reprint this email without
seeking our permission provided: 1) you do not abbreviate, add
to, or change the text in any way; 2) the authorship information
is retained; and 3) www.tymestrust.org is credited as the source.
Jane Colby is Executive Director of The Young ME Sufferers Trust.
She was a Headteacher for nine years, a member of the government
Chief Medical Officer's Working Group on CFS/ME and co-authored
ME/CFS In UK Schools, the largest epidemiological study of ME to
date. She is a life member of the National Association of Head Teachers and a Fellow of the Royal Society of Arts.
Copyright (c) 2014 The Young ME Sufferers Trust
.
.
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