The Real ME: A Stock Photography Resource for the Media
We’ve all seen them in the news stories about ME/CFS: the guy in a suit at the office, yawning; the beautiful woman sitting at her desk with her immaculate make-up and elegantly coiffed hair, hand to her head and looking slightly pained.
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"ME/CFS & Social Isolation - Survey Report" (2010). Paid for by ME/CFS Australia (Vic)

Discussion in 'Latest ME/CFS Research' started by Dolphin, Nov 13, 2014.

  1. Dolphin

    Dolphin Senior Member

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    The full text is at:
    http://emerge.org.au/dev/wp-content/uploads/2014/11/ME-CFS-social-isolation-report-2010.pdf

    Extract:
    *They're now called Emerge Australia
     
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  2. Dolphin

    Dolphin Senior Member

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    This is a report that has lots of good stuff in it I think. I'll post some over the day.
     
    Last edited: Nov 13, 2014
  3. Dolphin

    Dolphin Senior Member

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  4. Dolphin

    Dolphin Senior Member

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  5. Dolphin

    Dolphin Senior Member

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  6. Dolphin

    Dolphin Senior Member

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  7. Dolphin

    Dolphin Senior Member

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    Note that only 12% working full time.

    It says later that only 2 of the 12 students were full-time. So only 14% in full-time employment or study.

    Employment status.png
     
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  8. Dolphin

    Dolphin Senior Member

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    Current weekly income for people with ME/CFS in Australian dollars in 2010 survey.

    AUS $100 = US $82 = GBP 55 = EUR 70.

    This was an internet survey of members of an ME/CFS society. People from lower socioeconomic groups may be less likely to take part, perhaps.

    Current Weekly Income.png
     
  9. Dolphin

    Dolphin Senior Member

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    Hours working/volunteering of those that do work
    Hours working-volunteering of those that do work.png
     
  10. Dolphin

    Dolphin Senior Member

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    Impact of ME/CFS on those who do work, study or volunteer
    (many can't do any of them as can be seen from the fact the total sample was 163 although numbers who answered questions tended to be in 150s)

    Impact of ME-CFS on those who do work, study or volunteer (many can\'t do any of them).png
     
  11. Dolphin

    Dolphin Senior Member

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  12. Dolphin

    Dolphin Senior Member

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    Participation in common social events.png
     
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  13. Dolphin

    Dolphin Senior Member

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    Question:
    N=148 approximately (145-148 answered the preceding question)
    Difficulty participating in social activities due to ME-CFS.png
     
  14. Dolphin

    Dolphin Senior Member

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  15. Dolphin

    Dolphin Senior Member

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    Last edited: Nov 13, 2014
  16. Dolphin

    Dolphin Senior Member

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  17. Dolphin

    Dolphin Senior Member

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  18. Dolphin

    Dolphin Senior Member

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    Nearly half say zero. :(

    Daily or near daily contact with friends.png
     
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  19. Dolphin

    Dolphin Senior Member

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    Feeling isolated or cut off from society in the past year.png

    This graph is perhaps a little confusing. It contains responses to four separate questions:

    ---

    ---

    --

    n=142 for each question
     
  20. Dolphin

    Dolphin Senior Member

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    People with ME/CFS who filled in a survey were asked for reasons why they felt socially isolated (n=142 approximately) Reasons for Social Isolation.png
    Exact question:

     
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