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ME/CFS just on MSNBC..

Discussion in 'General ME/CFS News' started by KC22, Oct 12, 2009.

  1. KC22

    KC22 Senior Member

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    I just happened to turn on Dr. Nancy 15 minutes ago. She did a whole segment on CFS and the new research and the retroviral XMRV.

    She said the symptoms were:

    Extreme fatigue

    Flu -like feeling (headache, muscle aches, etc)

    Trouble concentrating

    immune problems

    She tried to interview a woman named Jennifer from Indiana who has it and asked her how she felt about the new discovery. They couldn't get her linked and she never got to answer the question..

    They next interview Dr. Mikovits. She explained the 67% of people found to have XMRV and more studies 300 patients with similar results.

    Dr. Nancy asked her if it was going to be held under the same scrutiny as cancer and something else. Dr. Mikovits said the study has been under careful scrutiny and will continue to be so.

    Dr. M. said she is continuiing studying and trying to find out where the virus is in the community.

    Possible 10 million infected. They are going to have their worked confirmed
    and develop therapies.

    I was taking notes as fast as I could.
  2. Dreambirdie

    Dreambirdie work in progress

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  3. Koan

    Koan Be the change.

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    Wow! That's great! Much more of this and, no matter the ultimate relevance of XMRV, the genie will be out of the bottle.

    :D
  4. jackie

    jackie Senior Member

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    Hey Koan , dreambirdie and kc22! Just watched the same show and realising the time constraints.... it was good to see the coverage.

    But I kept hoping Dr. Mikovits would have the chance to 'splain a bit more.

    I wonder if she had said this new virus was now the fourth known Retrovirus AND named the other three - "HIV, HTLV-1 and HTLV-2" - if Dr. Nancy would have made the crack about "these Wacky Viruses"?

    I'm not very knowledgable about science and the "Science" of this new discovery is what boggles my mind!

    I also have to remind myself to keep my sense of humour and cut folks some slack, I guess. Although I STILL can't find any mention in my ratty local paper!

    jackie
  5. KC22

    KC22 Senior Member

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    Jackie..

    Yes, I would have liked a longer segment. I wish we could have seen Dr. Mikovits, too. I was sorry that the woman from Indiana could not put a patient perspective on it, too. They tried.

    It's a start... Definitely, they need to dig deeper so we can hear more.

    Also, I found an article on my local newspaper online. Not sure if it is the actual newspaper.
  6. Summer

    Summer Senior Member

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    OT this thread

    Maybe we need a media links thread with no discussion where you can always go and find what is new in the media at one place??? I'm so new I do not know where to makes this suggestion.
  7. Frickly

    Frickly Senior Member

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    Summer

    Good idea. I asked Cort about it under "Nuts and Bolts".
  8. Aftermath

    Aftermath Guest

    We may do this at some point.

    For now, just start them as new threads in the "General ME/CFS news forum."

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