1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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ME/CFS Doctor List

Discussion in 'ME/CFS Doctors' started by slayadragon, Apr 21, 2011.

  1. slayadragon

    slayadragon Senior Member

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    I am putting together a list of doctors and researchers who know enough about this disease that they might be helpful in providing information or comments to the media.

    FYI, here is the project I'm working on.

    http://www.change.org/petitions/upd...and-economic-climate-re-me-and-cfs#signatures

    I have the list below as a starter. Are there are other people who should be included?

    Thanks much for your help!

    Best, Lisa

    *

    Dharam Ablashi
    David Bell
    Gordon Broderick
    Paul Cheney
    John Chia
    Dane Cook
    Kenny de Meirleir
    Derek Enlander
    Kenneth Friedman
    Byron Hyde
    Leonard Jason
    Jonathan Kerr
    Anthony Komaroff
    Charles Lapp
    Susan Levine
    Shih Ching Lo
    Jose Montoya
    Daniel Peterson
    Christopher Snell
    Michael Snyderman
    Staci Stevens
    Robert Suhadolnik
  2. dsdmom

    dsdmom Senior Member

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    Lucinda Bateman
    Nancy Klimas
  3. KC22

    KC22 Senior Member

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    Ohio
    Martin Lerner
  4. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    australia (brisbane)
    Dr lewis and Dr Deed in Australia.
  5. ukxmrv

    ukxmrv Senior Member

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    London
    Prof Murdoch in New Zealand

    Abhijit Chaudhuri

    and Professor Hooper

    in the UK
  6. SaveMe

    SaveMe *****

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    the city
    Benjamin Natelson

    but how could u forget the Queen of CFS....Klimas?
  7. slayadragon

    slayadragon Senior Member

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    Or forget Sarah Myhill either. Obviously that first list of mine was not very complete.

    More suggestions please? Surely there must be others.
  8. caledonia

    caledonia

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    Cincinnati, OH, USA
    Vincent Lombardi
    Judy Mikovits
    Ila Singh
  9. leaves

    leaves Senior Member

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    Dont think Sing or Mikovits are practicing md's??
  10. Hope123

    Hope123 Senior Member

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    A number of people on the list aren't MDs but I think the OP is just asking for people who have knowledge of ME/CFS and can provide media with accurate facts and impressions about ME/CFS.

    Fred Friedberg - IACFS President and psychologist
    Gudrun Lange -- neuropsychologist
    Andy Kogelnik -- Infectious disease doc
    Joseph Brewer - Infectious disease doc in ?Kansas City
    Peter Rowe -- pediatrician at Johns Hopkins
    Alison Bested -- in Toronto but I leave this up to people who have seen her
    Bruce Campbell -- behavioral psychologist who runs cfidsselfhelp.org (had CFS himself for several years and knows what behavioral psychology can or can't do)
    Alan and Kathy Light at University of Utah
  11. SpecialK82

    SpecialK82 Senior Member

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    USA
    Dr. Donnica Moore
  12. slayadragon

    slayadragon Senior Member

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    These are great! Yes, anybody who knows anything about CFS would be great.
  13. August59

    August59 Daughters High School Graduation

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    Upstate SC, USA
    Dr. Laura Black. She is at Hunter Hopkins Center with Dr. Lapp and she is very good. I'm sure she has has more clinic hours than Dr. Lapp over the last 5 years.
  14. drex13

    drex13 Senior Member

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    Columbus, Ohio
    How about Rich VanKonyenburg ?
  15. WillowJ

    WillowJ Senior Member

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    WA, USA
    Harvey Alter
    Yves Jammes (France, professor of medicine [pulmonology?], Universit de la Mditerrane)
    Michael Maes

    and how about Leonard Calabrese? see PMID 8148449, 9599909, 15351380 ... however no current work. maybe someone should phone him and ask some questions before adding him to the list: http://my.clevelandclinic.org/staff_directory/staff_display.aspx?doctorid=337

    Another like this is Eng Tan. See PMID 11958593, 9041942, 8878441. http://vivo.scripps.edu/display/TanEng
    This would be a great scientist to draw back into an interest in ME/CFS: http://www.curearthritis.org/research/in-honor-3-specific-awards

    Another person who hasn't researched ME/CFS in a while is G Nicholson. PMID 12887507, 12423773, 10691196
  16. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    Concord, NH
    Should we have our Drs permission before posting it here? How about if we don't know exactly what our Drs stance is, but they have helped you a lot?!

    GG
  17. WillowJ

    WillowJ Senior Member

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    WA, USA
  18. slayadragon

    slayadragon Senior Member

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    These are great...thanks.
  19. RestingInHim

    RestingInHim Realist

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    Riverside, CA, USA
    know anyone in southern california?
  20. insearchof

    insearchof Senior Member

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    Dr Elizabeth Dowsett UK

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