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Nitric oxide and its possible implication in ME/CFS (Part 2 of 2)
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ME/CFS diagnostic and treatment guidelines

Discussion in 'Diagnostic Guidelines and Laboratory Testing' started by shrewsbury, Nov 13, 2009.

  1. shrewsbury

    shrewsbury member

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    It has occurred to me that we don't seem to have a thread with the diagnostic and treament guidelines used in different countries, or the different Fukuda definitions.

    I think it would be useful. Especially for the newly diagnosed.

    I think it should be a no discussion page, like the media links thread. If there is something that we want to discuss, we can copy it to a new thread and do so there.

    I'll post the Canadian and the South Australian one that is derived from the Canadian.

    Hopefully, we'll get them from all countries.


    islandfinn:)
     
    Allyson likes this.
  2. shrewsbury

    shrewsbury member

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    ME/CFS Canadian Consensus Document and Guidelines - no discussion

    I was diagnosed using the ME/CFS Canadian Consensus Document (this link is to the full document published in the Journal of Chronic Fatigue Syndrome 11(1):7-115 2003.

    In looking for a quote today I noticed that along with Dr Carruthers, Dr Peterson, Dr Klimas, Dr Lerner and Dr De Meirleir were among the 12 international expert authors. As well as being experts in the field, they reviewed over 400 research papers on ME/CFS.

    A simplified form was put out for doctors: Myalgic Encephalomylitis / Chronic Fatigue Syndrome: A Clinical Case Definition and Guidelines for Medical Practioners, only 30 pages or so - lots of charts, bullets, lists of symptoms, ..... -I LOVE it as it is so easy to read and so comprehensive. The most accessible info I've seen in 8 years.
     
  3. shrewsbury

    shrewsbury member

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  4. Cort

    Cort Phoenix Rising Founder

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    Raleigh, NC
  5. Andrew

    Andrew Senior Member

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  6. shrewsbury

    shrewsbury member

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  7. mezombie

    mezombie Senior Member

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    More U.S. definitions:

    The 1994 Fukuda definition

    The 1988 Holmes definition (the one that created "CFS")

    Leonard Jason's comparison of the two definitions
     
  8. xanadu

    xanadu

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    Wrong link

    This thread is a great idea.

    This link actually links to the Overview.

    xan
     
  9. mezombie

    mezombie Senior Member

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    Canadian Consensus Document - link to full article

    The full Canadian Consensus Document, as published in the Journal of Chronic Fatigue Syndrome, can be found here.
     
  10. _Kim_

    _Kim_ Guest

    Great catch xanadu!

    Is this original article in the Journal of Chronic Fatigue Syndrome what has been dubbed the Canadian Consensus Document?

    Thanks marie as that answered my question. The only difference the two links we posted is that this one also includes Chronic Fatigue Syndrome Guidelines Editorial by Kenny De Meirleir and Neil McGregor
     
  11. shrewsbury

    shrewsbury member

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  12. gracenote

    gracenote All shall be well . . .

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    Japanese case definition for CFS

    JAPANESE CASE DEFINITION FOR CHRONIC FATIGUE SYNDROME
    prepared by CFS research group of Japan and the Ministry of Health, Labour and Welfare in 1991

    CRITERIA

    MAJOR

    1 Chief complaint of at least 6 months of persistent or multiple relapsing and disabling fatigue
    2 Exclusion of medical conditions that may explain the prolonged fatigue as major criteria

    MINOR

    Symptoms
    1 Mild fever or chills
    2 Sore throat
    3 Lymph node swelling
    4 Unknown muscle weakness
    5 Myalgia
    6 Prolonged (>24 h) fatigue after exercise
    7 Headache
    8 Migratory arthralgia
    9 Neuropsychological symptoms (more than one); sensitivity to light, temporary visual blind spots, forgetfulness, excessive irritability, confusion, difficulty thinking, inability to concentrate or depression
    10 Sleep disturbance
    11 Sudden onset of symptoms

    Signs (confirmed twice at least monthly intervals)
    1 Low-grade fever
    2 Nonexudative pharyngitis
    3 Lymph node swelling

    Two major criteria and 6 or more of the 11 symptom criteria and 2 or more of the 3 physical criteria; or 8 or more of 11 symptom criteria.
    CFS, Chronic Fatigue Syndrome.

    http://0-www3.interscience.wiley.com.iii.sonoma.edu/cgi-bin/fulltext/122322945/PDFSTART

     
  13. mezombie

    mezombie Senior Member

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  14. xanadu

    xanadu

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  15. mezombie

    mezombie Senior Member

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    Xanadu: Myalgic Encephalomyelitis definitions (pre-"CFS")

    Thanks for posting these definitions. They are forgotten by many and used by few, unfortunately. But it's important to remember that "CFS" was what the CDC decided to name the disease outbreak that took place in Incline Village in the early 1980s. Several physician/researchers felt quite strongly that this was an outbreak of Myalgic Encephalomyelitis, a disease recognized for 75 years in most parts of the world, but apparently not in the US.

    There are some on this board who feel historic M.E. is much more descriptive of their illness than any of the CFS definitions.

    Dr. Hyde has developed the Nightingale defintion of ME, which is also on the NAME-US.org site.
     
  16. mezombie

    mezombie Senior Member

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    Severe and Moderate Pediatric CFS

    Here's another great article that distinguishes between severe and moderate pedicatric CFS. Note that the criteria used come from the Canadian Consensus Document on ME/CFS.
     
  17. shrewsbury

    shrewsbury member

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    Definitions used in research

    Thanks everyone for the definitions! I have a hard time remembering them and knowing which are used in studies. A friend explained them to me so:

    Definitions Used in Research

    Holmes (1988?) - Prior lengthy CDC definition - not used any more

    1994 (Fukuda) (aka International) - CDC definition used by virtually every researcher to study CFS, has little value as a clinical definition

    Oxford (UK) - used only by a few UK researchers to study 'CFS'

    Canadian Consensus Criteria - Clinical (non research) definition: an excellent detailed definition that features post-exertional malaise and cognitive dysfunction - very very rarely used to study CFS

    Empirical Definition - very similar to the Canadian Consensus criteria, developed under the auspices of the IACFS/ME

    Empirical Definition - Reeves developed (2003) research definition - reduces emphasis on fatigue and discounts post-exertional malaise dramatically, add emotional factors for the first time, provides quantitative assessment of functionality - only used by the CDC
     
  18. starryeyes

    starryeyes Senior Member

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  19. Julia Rachel

    Julia Rachel

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    Great IDEA!
    Blessings,
    Julia
     
  20. IamME

    IamME Too sick for an identity

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    Don't know if anything more became of this:

    http://www.informaworld.com/smpp/content~content=a903736319

     

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