ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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ME CFS conference in New York 20th November 2013 relating to treatment .

Discussion in 'General ME/CFS News' started by denlander, Sep 13, 2013.

  1. denlander

    denlander

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    Nancy Klimas, Dan Peterson, Eric Schadt, Judy Mikovits and Derek Enlander will speak
    Dr Enlander will chair the meeting at Mount Sinai in New York
     
    Sing, Iquitos, merylg and 10 others like this.
  2. wastwater

    wastwater Senior Member

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    Id like to goto that its a bit far for me though
     
  3. Nielk

    Nielk

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    Great! Are there any details as to what time and which building?
     
  4. shannah

    shannah Senior Member

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    Intriguing ... tell us more!
     
  5. elbosque

    elbosque

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    I hope this will be webcast.
     
    aimossy, Sing, Desdinova and 4 others like this.
  6. shannah

    shannah Senior Member

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    Wouldn't that be nice???
     
    aimossy likes this.
  7. snowathlete

    snowathlete

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    Sounds great! Wish I could be there! wish I could write about it too, but I'm too ill lately. Hopefully someone else will report on it for those of us who can't attend.
     
    merylg likes this.
  8. usedtobeperkytina

    usedtobeperkytina Senior Member

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    Dr. Enlander, we have been working with a clinician in Birmingham, Alabama who wants to start caring for ME/CFS patients. For three months, I have sent her research. She reads it. She asks me questions. I go get the answers, etc. I feel she would be interested in the Nov. 20 workshop and an opportunity to meet the ones you said will be there. Is there any requirements for a clinician to be at the workshop?

    Tina Tidmore,
    Contracted Communications Consultant,
    PANDORA Org, 205-680-6890
     
    Sing, Iquitos, merylg and 4 others like this.
  9. cruzgirl

    cruzgirl

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    This sounds great. I am going to be in NY too late, so sad I will miss it. Perhaps I should instead try to see Dr Enlander. Anyone know how expensive, I am Canadian so will have no medical coverage.
     
  10. Nielk

    Nielk

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    I would love to attend and try to report back here.
     
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  11. Firestormm

    Firestormm Guest

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    Just making a note in my little book :D
     
  12. justinreilly

    justinreilly Stop the P2P! Adopt "ME" & CCC!

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    I will try to be there, probably with my parents. It will be nice to meet you and hopefully some others from PR, finally. My Mom came back from the last one and asked me if I had heard of Phoenix Rising which one of the patients had recommended. :)

    I have emailed the office. It is open for registration. I will post back here with instructions, cost if any, schedule when they get back to me with more details.
     
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  13. Mark

    Mark Acting CEO

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    It would be great to have some coverage of this event...if anybody who's attending would like to tweet it for PR, or write up an article, please contact me to discuss the options...

    Edit: just noticed Nielk and Gabby's posts, sorry...well anyway, the more the merrier...:)
     
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  14. Helen

    Helen Senior Member

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    Dear Dr. Enlander,

    I was very excited to read about the genome study of ME/CFS patients that you are conducting together with Dr. Eric Schadt. Will there possibly be any results of this study presented in the near future?

    Thank you so much for your work for the ME/CFS group.

    Best regards

    Helen
     
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  15. justinreilly

    justinreilly Stop the P2P! Adopt "ME" & CCC!

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    Just got the full info on the conference:

     
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  16. Nielk

    Nielk

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    Sing and Helen like this.
  17. acer2000

    acer2000 Senior Member

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    Can anyone comment more on this conference? I am interested in going if I can make the trip work (or maybe sending a family member). Is it worthwhile for patients? Is there a link to the talks from last year?
     
  18. Nielk

    Nielk

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    I'm sorry but, due to unforeseen circumstances, I will not be able to attend. I hope others will be there to report.
     
  19. justinreilly

    justinreilly Stop the P2P! Adopt "ME" & CCC!

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    I think the reaction a couple of years ago was positive, then again it was free. He was selling the dvd-roms for $20, but I don't think he posted any online. Don't know if anyone else did. btw it was on the same date, 11/20/2011 if you want to search
     
  20. justinreilly

    justinreilly Stop the P2P! Adopt "ME" & CCC!

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    Bumping up
     

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