Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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ME/CFS Case Definition/Symptom Survey

Discussion in 'ME/CFS Doctors' started by *GG*, Aug 26, 2009.

  1. *GG*

    *GG* Senior Member

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    Concord, NH
    .The ME/CFS Symptom Checklist is the standard guide for clinicians and research scientists for the evaluation of patients. The survey is presented here as a service to Dr. Nancy Klimas, M.D. of the University of Miami and her team of researchers who will use the collected data in their research on ME/CFS. In some cases, she may decide to share the collected data with other ME/CFS research teams. Please be advised, however, that the collected data will not be used for any other purpose and will be held in the strictest confidence. In completing the survey, you will NOT receive an automatic diagnosis, nor will you receive any sort of evaluation of your symptoms. You will, however, be advancing scientific research on ME/CFS. At the end of the survey you will have the option of adding your email address or not. By doing so, you are authorizing a member of the research team to follow up with you on this survey or invite you to participate in another study, should they consider such action appropriate. View Survey

    http://cfsknowledgecenter.ning.com/page/mecfs-case-definition-survey-1

    Hope I am not breaking some rule by posting this here?! I believe Dr Klimas is a well respected Dr for our disease?
     
  2. Cort

    Cort Phoenix Rising Founder

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    Raleigh, NC
    (I copied Gaston's Post here - to spread it around. )

    Nancy Klimas is great! We don't have those kinds of rules here - Nice survey. I took it.

    THANKS!:D
     
  3. Tony

    Tony Still working on it all..

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    Melbourne, Australia
    Good one...:) I just did it. Survey is short and easy to do.
     

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