Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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ME Biobank protocol paper published (February 2017)

Discussion in 'General ME/CFS Discussion' started by charles shepherd, Feb 22, 2017.

  1. charles shepherd

    charles shepherd Senior Member

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    The ME Biobank protocol paper is now published.

    The reference and link is below

    Lacerda, E M, Bowman, E W, Cliff, J M, Kingdon, C C, King, E C, Lee, J-S, Clark, T G, Dockrell, H M, Riley, E M, Curran, H and Nacul, L 2017

    The UK ME/CFS Biobank for biomedical research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis.

    Open Journal of Bioresources
    4: 4,

    DOI: https://doi.org/10.5334/ojb.28

    The UK ME biobank is funded by the MEA Ramsay Research Fund

    More information on the UK ME Biobank:

    http://cureme.lshtm.ac.uk

    Dr Charles Shepherd
    Chairman - ME Biobank Steering Group
     
  2. trishrhymes

    trishrhymes Senior Member

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    Thank you.

    Glanced through. Looks very professional.

    Are we allowed to know what stage the application to Wellcome for funding for this has reached?

    And dare I ask if anyone knows what has happened with the MEGA funding bid?
     
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  3. Barry53

    Barry53 Senior Member

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    UK
    Very promising.

    Are people able to register as interested for participating in future recruitment?

    Is the age limit of 60 a flat limit for all future recruitment, or is it re-evaluated for each recruitment?
     
  4. charles shepherd

    charles shepherd Senior Member

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    As you are probably aware, the preliminary bid to the Wellcome Trust was mainly related to costings

    As soon as we can make a progress report announcement regarding the Biobank bid I will let people know

    I am not aware of any progress report in relation to the MEGA bid - apart from the fact that it was submitted on time

    CS
     
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  5. charles shepherd

    charles shepherd Senior Member

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    As soon as we require more blood donor volunteers (people with ME/CFS or MS and/or more healthy controls) we will make a further announcement on the ME Biobank website and on the MEA website

    I suspect that inclusion and exclusion criteria for recruitment to the ME Biobank will remain the same as it is at present

    CS
     
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  6. charles shepherd

    charles shepherd Senior Member

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