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ME Biobank: December 2016 Newsletter

Discussion in 'General ME/CFS Discussion' started by charles shepherd, Dec 19, 2016.

  1. charles shepherd

    charles shepherd Senior Member

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    The December 2016 Newsletter from the ME Biobank is now up on the news section of the ME Biobank website:

    http://cureme.lshtm.ac.uk/category/news/

    The ME Biobank at the Royal Free Hospital forms part of the University College London Biobank and is funded by the ME Association Ramsay Research Fund

    Dr Charles Shepherd
    Chairman, ME Biobank Steering Group
     
    Solstice, Theodore, Dolphin and 8 others like this.
  2. MEMum

    MEMum Senior Member

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    Just double-checking,
    There is only one UK ME Biobank: incorporates Royal Free/UCL/London school of Hygiene and Tropical Medicine
     
  3. charles shepherd

    charles shepherd Senior Member

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    Yes - this is the first and only UK Biobank for blood samples from people with ME/CFS

    Website home page: http://cureme.lshtm.ac.uk
     
  4. Marco

    Marco Grrrrrrr!

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    Near Cognac, France
    Well done the MEA and everyone else involved.
     
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  5. AndyPR

    AndyPR RIP PR :'(

    Well, there will be a fatigue one once MEGA gets theirs set up, which they will call a CFS/ME biobank.
     
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  6. charles shepherd

    charles shepherd Senior Member

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    All of the blood samples that are now stored in the ME Biobank are from people who have Canadian and/or Fukuda defined ME/CFS

    As everyone has a very detailed clinical assessment prior to acceptance we can also detect if they meet other criteria such as SEID
     
    Comet likes this.
  7. AndyPR

    AndyPR RIP PR :'(

    Have no doubts that this biobank has been set up correctly, I just have absolutely no faith in what MEGA plans to do.
     
    Valentijn and Lindberg like this.

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