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ME Association - their thoughts on XMRV

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by V99, Jul 5, 2010.

  1. V99

    V99

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    I wont post the first part as it is mostly about the NIH statement, the CAA statement & WSJ


    http://www.meassociation.org.uk/index.php?option=com_content&view=article&id=1335:latest-xmrv-study-from-us-fails-to-find-evidence-of-the-virus-in-mecfs-mea-summary-and-statement&catid=30:news&Itemid=161


     
  2. Min

    Min Guest

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    Sitting on that fence all these years must be very painful for them, they'll get piles.

    If the tiny charities Invest in ME and ME Research UK can find researchers and fund recent and ongoing research looking for the biological cause of M.E. (using the Canadian criteria to select patients), why can't they?

    They keep asking for donations to the Ramsay Research fund but personally I wouldn't give them a single penny (nor the weasel huggers at Action for ME)
     
  3. V99

    V99

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    Nor would I, well said min.
     
  4. Gemini

    Gemini Senior Member

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    V99,

    Thanks for posting.

    In the discussion of similarities of HIV fatigue to ME/CFS, orthostatic intolerance in HIV is mentioned.
    Another HIV study
    www.ncbi.nlm.nih.gov/pubmed/2398458
    indicates 88% of 96 HIV patients experienced blood volume loss, another ME/CFS symptom.

    Raises the question of whether all retroviruses (HIV, HTLV, XMRV) cause OI and BV loss?
    And whether they all cause PEM or might that symptom be unique to XMRV?

    Gemini
     
  5. usedtobeperkytina

    usedtobeperkytina Senior Member

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    Clay, Alabama
    Gemini, very interesting.

    Tina
     

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