Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
Discuss the article on the Forums.

ME Association - their thoughts on XMRV

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by V99, Jul 5, 2010.

  1. V99

    V99

    Messages:
    1,471
    Likes:
    5
    UK
    I wont post the first part as it is mostly about the NIH statement, the CAA statement & WSJ


    http://www.meassociation.org.uk/index.php?option=com_content&view=article&id=1335:latest-xmrv-study-from-us-fails-to-find-evidence-of-the-virus-in-mecfs-mea-summary-and-statement&catid=30:news&Itemid=161


     
  2. Min

    Min Guest

    Messages:
    1,386
    Likes:
    1,923
    UK
    Sitting on that fence all these years must be very painful for them, they'll get piles.

    If the tiny charities Invest in ME and ME Research UK can find researchers and fund recent and ongoing research looking for the biological cause of M.E. (using the Canadian criteria to select patients), why can't they?

    They keep asking for donations to the Ramsay Research fund but personally I wouldn't give them a single penny (nor the weasel huggers at Action for ME)
     
  3. V99

    V99

    Messages:
    1,471
    Likes:
    5
    UK
    Nor would I, well said min.
     
  4. Gemini

    Gemini Senior Member

    Messages:
    612
    Likes:
    1,057
    V99,

    Thanks for posting.

    In the discussion of similarities of HIV fatigue to ME/CFS, orthostatic intolerance in HIV is mentioned.
    Another HIV study
    www.ncbi.nlm.nih.gov/pubmed/2398458
    indicates 88% of 96 HIV patients experienced blood volume loss, another ME/CFS symptom.

    Raises the question of whether all retroviruses (HIV, HTLV, XMRV) cause OI and BV loss?
    And whether they all cause PEM or might that symptom be unique to XMRV?

    Gemini
     
  5. usedtobeperkytina

    usedtobeperkytina Senior Member

    Messages:
    1,472
    Likes:
    498
    Clay, Alabama
    Gemini, very interesting.

    Tina
     

See more popular forum discussions.

Share This Page