Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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ME article in Melbourne newspaper Jan 2012

Discussion in 'General ME/CFS News' started by Allyson, Jan 12, 2013.

  1. Allyson

    Allyson

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  2. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    also in the me/cfs society south australia too, they seem to be up to date with the latest news articles etc.
    good find Ally
     
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  3. Allyson

    Allyson

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  4. k-AUS

    k-AUS

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    Hi guys,

    Being a Melbournian, I have to say that I was happy to see that The Age had included this article. Yes...great publicity. However, when I finished reading the article, I felt quite negative as I felt that it focused too much on the "fatigue" element and how that impacted on life. There was no mention of the millions of other issues we all have to deal with i.e.. POTS, OI, IBS, cystitis, seizures, lowered immunity and the list goes on........

    Also what else stood out for me was that they stated the "possible causes" as being:

    "hormonal factors, viral infection and general life stressors ".

    and that

    "four out of five people afflicted with CFS are women".

    I guess I just feel that ones friends and families as well as the public, will still think that ME/CFS is where hormonal and stressed out women get a virus and then get too tired to do their normal daily duties.....(then ten years later, get over it).

    IMO the article neglected to highlight the seriousness of ME/CFS and the fact that many people never recover from it.
     
  5. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    Atleast it didnt say it was a form of depression and the treatment for it is cbt/get??
     
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  6. Enid

    Enid Senior Member

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    Appalled to see estimated 90,000 there Allyson, but well done to this newspaper.
     
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  7. Allyson

    Allyson

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    Hi Enid,

    I think that number is erroneous and there are closer to 200,000 of us here - diagnosed that is; I am never sure where the stats come form this kind of article, or indeed , at all - do we have a national register.

    I imagine ME/cfs Australia bases its count on membership numbers.
     
  8. Allyson

    Allyson

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    yes, true Heaps, or advise slow walking as the best form of easy cheap exerciseas some placs do - slow walking is the worst thing you can do for OI/POTS/ EDS as you are upright for a long time with relatively little muscle movement to pump blood up to the heart/lungs/brain - hello crash!.
     
  9. Allyson

    Allyson

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    Hi K aus ,

    Great point; how would you feel about shooting that text off in an email to the Age - they may publish it as a letter as it is well said and very true. Can only provoke further debate and awareness too.

    All the best,
    Ally
     

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