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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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ME and cfs to be classified as seperate illnesses

Discussion in 'General ME/CFS News' started by Gerwyn, Apr 21, 2010.

  1. WillowJ

    WillowJ Senior Member

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    yes, that sounds like a great idea to me. :thumbsup:
  2. Bob

    Bob

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    Something that I think is relevent for this discussion is something Dr Deckoff-Jones said in Cort's interview...

    I think this is interesting, but it is a bit confusing, as the current diagnostic criteria does allow for other unknown fatiguing illnesses (i.e. not ME, as defined by WHO) to be included in the diagnosis...
    But maybe most of the patients who the well known specialist ME clinicians see, all have the same disease (but with some "seemingly diverse symptoms").

    The interview is worth reading if anyone hasn't read it yet.
  3. Mark

    Mark Acting CEO

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  4. Mij

    Mij Senior Member

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    This was my case too. I did not have sleep disturbances until the 9th year into this illness, no cognitive problems for at least 10yrs etc. My case was a sudden viral onset so I was initially diagnosed with PVFS. I went to see an ME specialist who helped put together the Canadian Criteria for ME and at first he didn't think I met the ME criteria but perhaps I had MS because of the relapsing nature. When MS was ruled out I was diagnosed with ME. So really it is a progression because the symptoms that are debilitating for me today are not the same as 20yrs ago.


    Mij
  5. Bob

    Bob

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