Discussion in 'General ME/CFS News' started by Gerwyn, Apr 21, 2010.
yes, that sounds like a great idea to me.
Something that I think is relevent for this discussion is something Dr Deckoff-Jones said in Cort's interview...
I think this is interesting, but it is a bit confusing, as the current diagnostic criteria does allow for other unknown fatiguing illnesses (i.e. not ME, as defined by WHO) to be included in the diagnosis...
But maybe most of the patients who the well known specialist ME clinicians see, all have the same disease (but with some "seemingly diverse symptoms").
The interview is worth reading if anyone hasn't read it yet.
I've now done so, here:
This was my case too. I did not have sleep disturbances until the 9th year into this illness, no cognitive problems for at least 10yrs etc. My case was a sudden viral onset so I was initially diagnosed with PVFS. I went to see an ME specialist who helped put together the Canadian Criteria for ME and at first he didn't think I met the ME criteria but perhaps I had MS because of the relapsing nature. When MS was ruled out I was diagnosed with ME. So really it is a progression because the symptoms that are debilitating for me today are not the same as 20yrs ago.
OK folks, as Mark says, the last few posts have been copied over to a new thread, to hopefully encourage more people to join in with this specific discussion...
You can also try a Google Site Search
Separate names with a comma.