Mithriel some people are permanently disabled without cycles of remission. Others, like me, have remissions. Does this mean we are fully well during remission? No. But we don't conform to CCC at all times. This is important to research: There could be something about our immune systems and/or endocrine systems that works differently. It could be valuable to know this for treatment development, vaccine development etc. If you simply declare that those of us who experience remissions don't really have ME at all you are missing the point. I do have ME even if I have struggled to find a doctor to accurately test for and recognize this fact. I am now in remission and do not have enough symptoms to meet CCC criteria. Next time winter comes around my system will likely shut down again and then maybe we can call it ME again by your definition. But that points to the problem - if it comes back then clearly it never really went away did it? So how can you say I do not have ME if I have remissions?