Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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ME Analysis - Patient created Web document relating to the PACE study

Discussion in 'Latest ME/CFS Research' started by alex3619, May 14, 2012.

  1. alex3619

    alex3619 Senior Member

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    I would like to thank Janelle for her presentation and I am glad they could sort out the phone number issue. I am hopeful they will be able to endorse the IACFSME primer as currently motioned. There were a number of good presentations, not only from advocates but from the medical professionals. I would like to thank all of them too.
     
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  2. oceanblue

    oceanblue Guest

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    Is it possible to see/hear/read Janelle's testimony anywhere?
     
  3. alex3619

    alex3619 Senior Member

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    Hi oceanblue, not yet. The entire thing might be available in a week or two. I missed Cort's testimony for example as I was asleep, so I will be looking out for the videos. Janelle might however post a written testimony somewhere. Bye, Alex
     
  4. Dolphin

    Dolphin Senior Member

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    oceanblue likes this.
  5. oceanblue

    oceanblue Guest

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    Good work, Janelle in covering so much important ground so effectively in such little time. Great to see Tom's paper and 'The Project' get such exposure.
     
    WillowJ likes this.
  6. Dolphin

    Dolphin Senior Member

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    WillowJ and Bob like this.

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