Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Mayo clinic starts Mitochondrial biobank & is recruiting volunteers!

Discussion in 'Active Clinical Studies' started by FernRhizome, Feb 5, 2010.

  1. FernRhizome

    FernRhizome Senior Member

    Hi Folks:
    As a member of the United Mitochondrial Diseases Foundation I just received an e-mail that they are working with the Mayo Clinic to start a new biobank of blood samples of folks with mitochondrial diseases, included acquired mito diseases. You can read more about it at the following website below. They are looking for folks to donate blood and answer some questions. It's all for research purposes so you don't get back any individual results.

    Eventually, Dr. Vamsi Mootha's Boston lab will have available the new "chip" test from a drop of blood to diangosis mito disease becomes available in the human model. I am guessing this may be why UMDF and the Mayo Clinic are starting up a biobank for blood. As previously a muscle tissue biopsy was needed for testing. So if they are biobanking blood this is great news that they must be close to being able to look at mito disorders via blood samples. ~FernRhizome
  2. _Kim_

    _Kim_ Guest

    To Learn More:
    Call or e-mail a Mitochondrial Disease Biobank Staff Member:
    507-293-1386 (local)
    1-877-594-2149 (toll-free)
  3. Wayne

    Wayne Senior Member

    Ashland, Oregon
    Thanks for posting this information Fern, even though I'm about a year late. :)
  4. *GG*

    *GG* Senior Member

    Concord, NH
    Thanks for your post Wayne, it brought it to my radar screen. Looks like it will be easier to participate in than CAA's Biobank!


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