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May 12 Government Observances

Discussion in 'Action Alerts and Advocacy' started by Asa, May 12, 2015.

  1. Asa

    Asa Senior Member

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    Which governments (which departments/agencies) feature May 12 as ME/CFS Awareness Day? Pages where it is featured? Pages where it should be featured?

    Below then, something for the next (??) CFSAC meeting?


    CDC (last update 11 May 2015): "Chronic Fatigue Syndrome Awareness Day - May 12"... Uses terms "CFS" and "CFS/ME" except when quoting the title of the recent IOM report; Uses term "illness" (not disease). (Under "More Information", an AHRQ link links to a 2002 archived page.)
    http://www.cdc.gov/features/cfsawarenessday/


    [Edit: the answer to everything below is "No" - the gov media below did not feature May 12 as ME/CFS Awareness Day.]

    Will http://www.hhs.gov/blog/ feature ME/CFS May 12 info? Other posts include National Women's Health Week (May 10-16); National Nurses Week (May 6-12); Public Service Week recognizes HHS employees (May 5-?); and "1st Annual" May: National Physical Fitness and Sports Month; etc.

    HHS twitter? CDC twitter? OWH* twitter? [Edit: NCCDPHP twitter? NIH twitter?]
    https://twitter.com/hhsgov and https://twitter.com/cdcgov and https://twitter.com/womenshealth [and https://twitter.com/CDCChronic and https://twitter.com/nih]
    (Ex. May 11 National Women's Check-up Day; May 7 National Children's Mental Health Awareness Day) / (*IMO, ME/CFS should not be in OWH, but since it is...)


    HHS.gov Awareness Months/Days..."In order to draw attention to health topics, governmental and non-governmental entities have designated certain months as specific health awareness months...". May 12 ME/CFS not listed. http://www.hhs.gov/ash/oah/news/health-awareness-months.html

    CDC.gov Women's Health Awareness Months/Days (Source - Office on Women's Health, OWH): ...May 12 Fibromyalgia Awareness Day (No mention of ME/CFS) http://www.cdc.gov/women/observances/

    Healthfinder.gov National Health Observances (NHOs): No ME/CFS, but "The 2015 calendar features more than 200 National Health Observances with up-to-date information and outreach materials..." http://healthfinder.gov/nho/ and http://healthfinder.gov/NHO/nhoyear.aspx?year=2015 and http://healthfinder.gov/NHO/nho.aspx?year=2015#month-5;

    Note: NHOs include May 12-16 National Neuropathy Awareness Week.
    Note: OWH sponsors (at least) three observances. (Why not May 12 ME/CFS?)
    [Edit: Pages from all above links saved May 12 at http://archive.org/web/]


    Other government observance/awareness pages?


    [Edit: 2012 HHS CFSAC notice of May 12 as International ME/CFS Awareness Day: http://web.archive.org/web/20120708024540/http://www.hhs.gov/advcomcfs/cfsac-cfsa-day.html]

    [The Office of Women's Health Blog did not feature May 12 as ME/CFS Awareness Day: http://womenshealth.gov/news/index.html]
     
    Last edited: May 18, 2015
  2. Asa

    Asa Senior Member

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  3. Asa

    Asa Senior Member

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    "bump" in relation to this thread: http://forums.phoenixrising.me/inde...rticle-touting-benefits-of-cbt-and-get.41461/

    Note: Add National Library of Medicine twitter to list of US gov agencies that tweet about health-related topics. See post 1. https://twitter.com/nlm_news

    Any other suggestions? To submit to CFSAC?

    Edit: Add Medline Plus twitter https://twitter.com/medlineplus?lang=sv

    Medline Plus has tweeted at least once re CFS, though linked article on immune problems is now (November 2015) MIA. Earlier versions of the page have been archived.
    http://web.archive.org/web/20150421...ih.gov/medlineplus/news/fullstory_151202.html
     
    Last edited: Nov 26, 2015

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