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Maureen Hanson's presentation at Solve CFS

Discussion in 'General ME/CFS News' started by Kati, Sep 1, 2016.

  1. Kati

    Kati Patient in training

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    Today was Maureen Hanson's webinar presented by Solve CFS and hosted by @znahle.
    I managed to pick it up halfway after returning from doctor app. I totally forgot about it.

    I got a couple of screenshots about her own study, the microbiome, but missed her discussion about the Naviaux paper.

    I presume it will be recorded, I would like to watch it again.

    But in the meantime, here are a few screen shots

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    Please note she is presenting online next week, she says her presentation will be more in depth.

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    Last edited: Sep 1, 2016
  2. Kati

    Kati Patient in training

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    She also announced the foundation of the 'Centre for Enervating Neuro-Immune Disease'

    image.jpeg
     
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  3. shannah

    shannah Senior Member

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    Well there's unique naming 'Center for Enervating Neuroimmune Disease' - good for them!

    Thanks for the great screen shots @Kati
     
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  4. dancer

    dancer Senior Member

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    I caught the earlier part, and she talked about how many similar findings their metabolomics study has to the Naviaux findings. She compared and contrasted (her study had fewer subjects, only women, and they didn't look at as many metabolites) but there was a significant overlap in findings - clear difference between patients and controls, many of the same lowered metabolites. That similar finding in a completely different geographic/patient cohort seemed really encouraging to me.
     
  5. Kati

    Kati Patient in training

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    Thank you @dancer, did she say if she will publish that work?
     
  6. dancer

    dancer Senior Member

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    I'm sorry @Kati - she talked about several studies their group is doing, and it's all muddled in my head about what stage the various ones are at. She did have a cool comparative chart, though with their work and the Naviaux paper. AND I was very appreciative that she discussed the inappropriate photos that media used to report their other research. So awesome to have someone other than a patient understand how ridiculous and harmful those "yawning and sleepy at desk" photos are.
     
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  7. Kati

    Kati Patient in training

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  8. *GG*

    *GG* Senior Member

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    Concord, NH
  9. AndyPR

    AndyPR Cookies for Tired Sam

    Now available on Youtube
     
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  10. trishrhymes

    trishrhymes Senior Member

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    Thanks for the link to the talk, it's excellent. Dr Hanson is such a good clear presenter of research information in a comprehensible way. So exciting to hear of all her good work along with that of Naviaux, Davis and others. It's been a good week. I wonder whether I could get my GP to watch it!
     
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  11. AndyPR

    AndyPR Cookies for Tired Sam

    OK, I'm VERY non technical about ME stuff but I think even I can appreciate this
    Screen Shot 2016-09-02 at 14.26.03.png
    This is where Dr Hanson is comparing some of the results from her metabolic study that she talks about to the recent study by Dr Naviaux (Naviaux on left, Hanson on right). Significant common results found and both studies confirmed a hypometabolic state!! :woot::thumbsup::balloons:
    Skip to 18 mins in if you want to get straight to the metabolic stuff
     
  12. PennyIA

    PennyIA Senior Member

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    So, if she ends up publishing her study that found hypometabolic state... I think that DOES COUNT as an independent study that confirms the findings of Naviaux? A couple of larger ones finding the same thing would be all the leverage we need to really consider the theories validated.

    Now if only we can speed through the next 5-10 years and just have a good, effective treatment already - I want my life back.
     
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  13. BurnA

    BurnA Senior Member

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    This is a really good webinar.
    Maureen Hanson has appeared out of nowhere almost, to be at the cutting edge of ME CFS research. Her soon to be published study should ensure more good publicity for ME and metabolites, and she is not shy about reminding all, about the lack of funding or the poor press treatment of ME patients.

    She also mentions in this webinar work that is ongoing which could lead to more findings.

    Do watch and thank her on Twitter or elsewhere if you can.
     
  14. lansbergen

    lansbergen Senior Member

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    Did you do a site search?
     
  15. BurnA

    BurnA Senior Member

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  16. Gingergrrl

    Gingergrrl Senior Member

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    Very interesting thread and I was not familiar with Maureen Hanson before either. But the new center sounds great and I know that area well b/c my sister went to college at Cornell (many years ago)! This is very exciting that another researcher is finding a similar pattern (is that the right word) and hoping this will bring more legitimacy to all unclear illnesses soon and that the metabolomics testing will become more common.
     
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  17. lansbergen

    lansbergen Senior Member

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  18. voner

    voner Senior Member

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    Anyone know the rs# for these cited snps that are cited? @Valentijn??

    image.png
     
    Last edited: Sep 2, 2016
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  19. Denise

    Denise Senior Member

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    I have been following her ME work for several years (2011 or before I believe). I remember thinking it notable that for her study on EBV(?) and ME (can't find the paper) the blood draws for the study were done in the patient's home! (To me that said she truly understood the disability associated with this disease.)

    She presented at the 2011 IACFS/ME conference (work done with David Bell)
    upload_2016-9-2_16-47-14.png

    I agree though that she seems to be more involved in ME research now than before.
     
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  20. voner

    voner Senior Member

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    I was impressed with the breadth of topics and clarity of the presentation. I wonder if she age matched her patients and controls in the metabalomics study?

    IT would be very interesting to hear of her discussions with Drs Davis and Naviaux.
     
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