Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Maudsley CFS CBT price list, claims treatment 'can' result in return to work

Discussion in 'Latest ME/CFS Research' started by Esther12, Feb 12, 2014.

  1. Dolphin

    Dolphin Senior Member

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    Don't think he's associated with any CFS services at the moment? Here's a profile page: http://www.psych.ox.ac.uk/team/PIs/michael-sharpe
     
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  2. Tom Kindlon

    Tom Kindlon Senior Member

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    This refers to my second comment also which I just posted now which other people wouldn't have seen unless they went to the site:
    http://www.plosone.org/annotation/listThread.action?root=78707
     
  3. Esther12

    Esther12 Senior Member

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    How did they calculate costs of CBT/GET in the cost-effectiveness paper?

    It looks like they just stated them:

    If they just get to say that their treatments cost whatever they want, then it's not hard to claim that they are cost effective.
     
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  4. Esther12

    Esther12 Senior Member

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    Just looking at another piece of Maudsley CFS promotional literature:

    https://www.national.slam.nhs.uk/wp-content/uploads/2011/06/Chronic-Fatigue-Service-booklet.pdf

    They provide some figures and graphs, none of which include data for a control group (well there's one that compares CBT and a psycho-educational intervention, but there was no real difference between them).

    Mainly it's anecdotes (most seemed to be from teens, even though the unit is for 14-adult):

    From one of their successful cases:

     

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    Last edited: Mar 2, 2014
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  5. Bob

    Bob

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    I don't know where they get the 65% figure from. It's not an accurate PACE trial result even if the effects of SMC are included. I think they may have got even more confused than usual. For 'full recovery' I think they are referring to the type of recovery that can mean deterioration.
     
    Last edited: Mar 17, 2015
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