ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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Mastocytosis: Diagnosis, Classification, and Therapy

Discussion in 'Mast Cell Disorders/Mastocytosis' started by nanonug, Nov 15, 2012.

  1. nanonug

    nanonug Senior Member

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    Virginia, USA
  2. MNC

    MNC Senior Member

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    Thanks for this.
     
  3. xchocoholic

    xchocoholic Senior Member

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    Hi nanonug,

    In looking at page 31, I noticed that they didn't recommend treating for h pylori for peptic
    ulcers. Is it possible that this area of medicine has missed that ? Or is this info old ?

    They mentioned treating neuro symptoms with h1s too. What's up with that ?

    Tc .. X
     
  4. nanonug

    nanonug Senior Member

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    These would be for H. pylori-negative peptic ulcers, caused by excessive histamine leading to increased stomach acid.

    H1/H2 blockers appear to be "standard practice" for mast cell activation disorders. I suspect this is due to the auto-excitatory nature of histamine on mast cells. However, there might be other reasons I am not aware of.
     
    xchocoholic likes this.
  5. xchocoholic

    xchocoholic Senior Member

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    I can tell from experimenting with h1 mc meds, including Benadryl, and Klonopin that h1s don't stop my myoclonus / jerking.
    Klonopin nails it tho. So I'm surprised that they'd suggest using mc meds for neuro problems. It is just a chart
    tho. Lol.

    tc .. X
     
  6. nanonug

    nanonug Senior Member

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    What I found most interesting was the suggestion of using cromolyn sodium for neuro symptoms. Cromolyn sodium pretty much stays in the gut so I guess the old adage of "it's all in your gut" might old true after all. In my case, there is definitely a very strong correlation between gut and neurological symptoms.
     

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