Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
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Mast cell disorders and ME/CFS (BBC medical item)

Discussion in 'General ME/CFS Discussion' started by charles shepherd, Mar 16, 2017.

  1. charles shepherd

    charles shepherd Senior Member

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    GreyOwl, rosie26, SamanthaJ and 6 others like this.
  2. keenly

    keenly Senior Member

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    UK
    I agree 100
     
  3. Ravn

    Ravn

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    If mast cells are implicated in ME then treating for mast cell activation could conceivably help ME symptoms. In theory. Does anyone have personal experience with this? I have both diagnoses, ME and MCAS, and so far mast cell meds have resulted in notable improvement in the more allergy-like symptoms (flushing, dermatographia) but no help at all for the classical ME symptoms like PEM. But have only been on the meds for a couple of months.
     
  4. mdb55

    mdb55

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    Do you mind sharing which medications? I've tried over the counter ones for allergies.
     
  5. Ravn

    Ravn

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    H1 & H2 anti-histamines at very high rates plus sodium cromoglycate plus vitamin c (all as prescribed by doctor).
     

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