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Maroti, Ljungar: Differences in alexithymia and emotional awareness in exhaustion syndrome and CFS

Discussion in 'Latest ME/CFS Research' started by mango, Oct 1, 2016.

  1. mango

    mango Senior Member

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    Differences in alexithymia and emotional awareness in exhaustion syndrome and chronic fatigue syndrome

    Maroti D
    1, Molander P 2,3, Bileviciute-Ljungar I 4,5.

    Author information

    1 Department of Clinical Sciences, Karolinska Institutet and Department of Rehabilitation Medicine, Danderyd Hospital, Stockholm, Sweden.
    2 Department of Medical and Health Sciences, Linköping University and Region Östergotland, Linköping, Sweden.
    3 Department of Behavioral Sciences and Learning, Linköping University, Linköping, Sweden.
    4 Department of Clinical Sciences, Karolinska Institutet and Department of Rehabilitation Medicine, Danderyd Hospital, Stockholm, Sweden.
    5 Department of Medical and Health Sciences, Linköping University and Region Östergotland, Linköping,

    Scand J Psychol. 2016 Sep 30. doi: 10.1111/sjop.12332. [Epub ahead of print]
    DOI: 10.1111/sjop.12332

    Abstract
    Symptoms of Exhaustion Syndrome (ES) and Chronic Fatigue Syndrome (CFS) are overlapping and create difficulties of differential diagnosis. Empirical studies comparing ES and CFS are scarce.

    This study aims to investigate if there are any emotional differences between ES and CFS.

    This cross-sectional study compared self-reported alexithymia and observer-rated emotional awareness in patients with ES (n = 31), CFS (n = 38) and healthy controls (HC) (n = 30).

    Self-reported alexithymia was measured with the Toronto Alexithymia Scale-20 (TAS-20) and emotional awareness with an observer-rated performance test, the Level of Emotional Awareness Scale (LEAS). Additionally, depression and anxiety were scored by the Hospital Anxiety and Depression Scale (HADS).

    Results show that patients with ES expressed higher self-reported alexithymia in the TAS-20 compared to HC, but had similar emotional awareness capacity in the observer-rated performance test, the LEAS.

    Patients with CFS expressed more difficulties in identifying emotions compared to HCs, and performed significantly worse in the LEAS-total and spent more time completing the LEAS as compared to HC.

    Correlation and multiple regressions analyses revealed that depression and anxiety positively correlated with and explained part of the variances in alexithymia scores, while age and group explained the major part of the variance in LEAS.

    Findings of this study indicate that emotional status is different in patients with ES and CFS with respect to both self-reported alexithymia and observer-rated emotional awareness.

    Emotional parameters should be approached both in clinical investigation and psychotherapy for patients with ES and CFS.

    Keywords: alexithymia; chronic fatigue syndrome; depression; emotional awareness; exhaustion syndrome

    https://www.ncbi.nlm.nih.gov/pubmed/27686801
     
    Last edited: Oct 1, 2016
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  2. mango

    mango Senior Member

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    https://en.wikipedia.org/wiki/Alexithymia
     
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  3. NL93

    NL93 Senior Member

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    The Netherlands
    What on earth is Exhaustion Syndrome? o_O
     
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  4. lansbergen

    lansbergen Senior Member

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  5. mango

    mango Senior Member

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  6. mango

    mango Senior Member

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    I've read the full-text version now. I think they are trying to say that the effect of CBT could be increased by adding a couple of "psycho-educative sessions of emotional awareness training", since CFS patients have insufficient emotional awareness capacity and big difficulties in describing feelings...

    :bang-head::mad::depressed::aghhh::vomit::grumpy:
     
    Last edited: Oct 1, 2016
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  7. Denise

    Denise Senior Member

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    What if patients can describe their feelings but don't want them reproduced in a public place or here for instance?
    And to be clear, I am certainly aware of my emotions about this abstract.
     
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  8. trishrhymes

    trishrhymes Senior Member

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    Oh how I wish they would stop trying to mess with what's going on in my head and get on with what's going on in my body. I'm afraid my reaction to this is my emotions are none of their damn business. Looks like another good reason to steer well clear of CBT.
     
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  9. mango

    mango Senior Member

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  10. mango

    mango Senior Member

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    (my bolding)
     
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  11. mango

    mango Senior Member

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  12. mango

    mango Senior Member

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  13. Glycon

    Glycon World's Most Dangerous Hand Puppet

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    ON, Canada
    20100812-ikea_help.png
     
    Last edited: Oct 1, 2016
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  14. mango

    mango Senior Member

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  15. trishrhymes

    trishrhymes Senior Member

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    Thanks for providing all this info, mango. I haven't been able to access the full paper.

    I'm pleased to see them recognising that CFS is an organic illness. But I'm still suspicious about why they want to do such a study.

    And I notice they quote a Chalder claim of curing 18% of CFS patients with CBT. In the light of the PACE results reanalysis this looks distinctly dodgy.

    I don't know why I'm bothering with this really, especially as it's 2.15am here and I should be asleep. Since sleep is eluding me, I fancied some human interaction and this was the best i could find! Thanks for your company, mango!!!! :hug:
     
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  16. mango

    mango Senior Member

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  17. trishrhymes

    trishrhymes Senior Member

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    Damn, now they're quoting White and his ' moderate effects'. :bang-head::bang-head::bang-head:
     
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  18. mango

    mango Senior Member

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    Dodgy indeed...

    Thank *you* for your company, trishrhymes! :hug: It's in the middle of the night here too, but I'm still wide awake because I slept all day (my body clock is totally out of whack because I'm in a crash at the moment...).

    Yes, it's nice to see them recognising CFS as an organic illness, but sadly those words are kind of worthless unless they are also reflected in their actions etc...

    Ljungar is the main doctor at one of the ME/CFS specialist centres here in Sweden, and unfortunately she has quite a strong influence on a "political" level even outside the clinic... like for example by changing the content of the ME/CFS pages on the main national medical information websites etc.

    Many of Ljungar's patients believe that she has a fully biomedical approach to ME/CFS (despite her history of BPS research into ME/CFS etc), and are happy to take part in her studies etc, so it feels very important to me to try and pull the curtains back a bit and show them what's really going on; what Ljungar is actually focusing on, despite what she claims when talking to her patients...
     
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  19. trishrhymes

    trishrhymes Senior Member

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    Interesting background information mango. What treatment does she use?

    The fact that she's quoting White and Chalder's success claims without questioning their validity for an organic condition shows you're right to doubt her.

    Would she believe CBT can cure people with any other organic illness, I wonder. It would be interesting to ask her whether she thinks CBT, with or without her added emotion training would cure MS or Parkinson's disease.
     
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  20. mango

    mango Senior Member

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    Very good questions... I'd be very interested in getting to know what she truly believes,...

    I don't know what treatments she is currently using. I've seen extremely few mentions about treatments so far (in the Swedish ME/CFS discussion groups), it's possible that most of her patients are still going through the diagnostic process with lots of different tests and interviews etc.

    Ljungar is currently planning a ME/CFS study on Chlamydia Pneumoniaue (TWAR), and another one about potential biomarkers in saliva and blood plasma (I haven't gotten around to reading the details about them yet). Also, there's another Swedish researcher with BPS beliefs, Gunnar Olsson, currently doing what is presented as "biomedical" research into ME/CFS,... however, reading the details of his study registration application it's quite clear that it's actually about CBT/GET :(

    I just wish the BPS people would leave the biomedical research to the genuinely biomedical researchers. I suspect these studies might only muddy the waters even further, and once again hog all of what very little research funding there is... :(
     
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