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Manchester report reveals that many people with ME/CFS don’t trust their GPs

Discussion in 'General ME/CFS News' started by AndyPR, Mar 17, 2017.

  1. AndyPR

    AndyPR RIP PR :'(

    http://www.meassociation.org.uk/201...ps-healthwatch-trafford-survey-17-march-2017/
     
    Woolie, Aurator, Shoshana and 22 others like this.
  2. sarah darwins

    sarah darwins I told you I was ill

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    Marvellous. This is what biopsychosocial domination of the field has achieved — total confusion and distrust.

    This survey alone should convince NICE that the current situation is a disaster, and that psychologists and psychiatrists should not be let anywhere near chronically ill people except at the patient's request and in the appropriate role of support, not 'treatment'.
     
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  3. charles shepherd

    charles shepherd Senior Member

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    MEA INPUT INTO (UK) MEDICAL EDUCATION ON ME/CFS:

    Just a reminder that we still have funds available in our Medical Education Department to send out copies of the 132 page MEA purple book (ME/CFS/PVFS - An Exploration of the Key Clinical Issues) to any GP or hospital doctor who would benefit from having up to date information on:

    1 All aspects of Research into ME/CFS,
    2 Clinical Asseessment and Diagnosis of ME/CFS,
    3 All aspects of Management of ME/CFS

    The MEA purple book also has a very comprehensive Reference section containing over 500 of the most important research papers and clinical trial reports

    As the MEA takes a very critical position on NICE, CBT, and GET, this is reflected in our purple book information and guidance to doctors

    The book is sent out with a covering explanatory letter from myself

    If you want a copy sending to your GP or hospital specialist, please send the name of the doctor and the surgery or hospital address to Gill or Helen at the MEA office

    MEA purple book: http://www.meassociation.org.uk/201...ch-masterwork-is-published-today-1-june-2016/

    We also met with Professor Ian Curran from the GMC at the House of Lords back in February to discuss medical education at both an undergraduate and postgraduate level

    We are now hoping to have a similar discussion with Professor Jenny Higham from the Medical Schools Council - the organisation that is responsible for the content of the undergraduate medical curriculum

    Minutes for the House of Lords meeting with the GMC representative:

    http://www.meassociation.org.uk/201...nutes-of-the-meeting-held-on-7-february-2017/

    Dr Charles Shepherd
    Hon Medical Adviser, MEA
     
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  4. user9876

    user9876 Senior Member

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    It always worries me when reports like this identify a clear problem and suggest:
    Given the state of specialist services and the people who would end up training GPs I wonder if it is better to have them in an ignorant state rather than in one where they are pushing harmful treatments and claiming they can cure people with GET.

    Whilst GPs are a big issue the real issue is those at the top who give mis-information and are allowed to get away with spinning trial results to patients and doctors - basically lying to them. We need to stop this before any other services will improve.
     
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  5. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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  6. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    What kind of response have you gotten from this?
     
  7. Esther12

    Esther12

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    Treatment of ME/CFS is terrible so we need to give more money to those responsibile for this.
     
    TiredSam likes this.
  8. A.B.

    A.B. Senior Member

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    I remember reading some Wessely presentation where he claimed the BPS approach to this illness would lead to peace and harmony (or something to that extent).
     
  9. suseq

    suseq

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    I applaud Healthcare Trafford for recognising that such a survey was needed and that better care and understanding is required. The questions are relevant and the findings will surprise no-one who lives with this illness.

    And I agree with the points made by @sarah darwins and @user9876. Until the corrupted BPS model and its protagonists hypothesis and spin on this illness is completely refuted, any initiatives to raise understanding are at risk of being undermined.

    Unfortunately I live in an area that comes under the King's College Trust so I have first hand experience of how the BPS model and its false illness beliefs have compromised my health care.

    Luckily I have an extremely supportive GP, who is also a member of my local CCG, who has been willing to listen to, observe, respect and consider my lived experience and the increasing bio-medical research being carried out and give as much support as possible within current guidelines. Without them I think I would have given up some time ago since I live alone, and the disbelief and contempt this illness brings on top of its debilitating signs and symptoms is both shocking and often soul destroying.

    However, my innate resourcefulness, good humour and sense of injustice and the ridiculous has helped me stand my corner, take care of myself and make the best of a bad situation. And that's why I'm so hopeful and grateful for everything that is being done to make a difference.
     
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  10. Most sharks are completely harmless to Humans, in fact, they help keep the oceans and thus indirectly, healthy.

    But I wouldn't like to be swimming bare naked with my nutsack within chewable reach of a shark...much same thing when considering what some docs have done :p
     
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  11. keenly

    keenly

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    UK
    IS PROFESSOR SIMON WESSELY GUILTY OF MISLEADING
    MEDICAL PROFESSIONALS AND OTHERS?

    A Call for a Parliamentary Select-Committee
    of Inquiry into UK ME/CFS Policy

    http://www.me-ireland.com/wessely.pdf

    Why is this cretin still around? He is the Tony Blair of the ME world.
     
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  12. keenly

    keenly

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    Psychiatry is a huge business. We must understand everything is corrupt.
     
    Jan likes this.
  13. Dolphin

    Dolphin Senior Member

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  14. Chrisb

    Chrisb Senior Member

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    Can one be sure that he did not merely promise "PACE for our time"?
     
  15. Aurator

    Aurator Senior Member

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    I live in Trafford, and have paid visits to hospitals both there and in Manchester. The hospitals I visited were as well equipped to deal with ME as medieval leech doctors were to deal with bubonic plague.

    My GP practice is in Manchester. I'm pretty sure they don't believe ME/CFS is a physical illness there, so I rarely go if I can help it. Things would no doubt be different if BPS propaganda hadn't had such an insidious effect on people's attitudes to ME over the years - on medical staff first and foremost. In every clinic I attend I can't seriously be mistaken for anything other than entirely rational, and yet it's fairly evident that this is still not enough to overcome the entrenched belief in some medical staff that ME patients are primarily psych cases.
     
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  16. Tom Kindlon

    Tom Kindlon Senior Member

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  17. Tom Kindlon

    Tom Kindlon Senior Member

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    https://www.facebook.com/tom.kindlo...=1347944431966746&comment_tracking={"tn":"R"}
     
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