Discussion in 'General ME/CFS News' started by AndyPR, Mar 17, 2017.
Marvellous. This is what biopsychosocial domination of the field has achieved — total confusion and distrust.
This survey alone should convince NICE that the current situation is a disaster, and that psychologists and psychiatrists should not be let anywhere near chronically ill people except at the patient's request and in the appropriate role of support, not 'treatment'.
MEA INPUT INTO (UK) MEDICAL EDUCATION ON ME/CFS:
Just a reminder that we still have funds available in our Medical Education Department to send out copies of the 132 page MEA purple book (ME/CFS/PVFS - An Exploration of the Key Clinical Issues) to any GP or hospital doctor who would benefit from having up to date information on:
1 All aspects of Research into ME/CFS,
2 Clinical Asseessment and Diagnosis of ME/CFS,
3 All aspects of Management of ME/CFS
The MEA purple book also has a very comprehensive Reference section containing over 500 of the most important research papers and clinical trial reports
As the MEA takes a very critical position on NICE, CBT, and GET, this is reflected in our purple book information and guidance to doctors
The book is sent out with a covering explanatory letter from myself
If you want a copy sending to your GP or hospital specialist, please send the name of the doctor and the surgery or hospital address to Gill or Helen at the MEA office
MEA purple book: http://www.meassociation.org.uk/201...ch-masterwork-is-published-today-1-june-2016/
We also met with Professor Ian Curran from the GMC at the House of Lords back in February to discuss medical education at both an undergraduate and postgraduate level
We are now hoping to have a similar discussion with Professor Jenny Higham from the Medical Schools Council - the organisation that is responsible for the content of the undergraduate medical curriculum
Minutes for the House of Lords meeting with the GMC representative:
Dr Charles Shepherd
Hon Medical Adviser, MEA
It always worries me when reports like this identify a clear problem and suggest:
Given the state of specialist services and the people who would end up training GPs I wonder if it is better to have them in an ignorant state rather than in one where they are pushing harmful treatments and claiming they can cure people with GET.
Whilst GPs are a big issue the real issue is those at the top who give mis-information and are allowed to get away with spinning trial results to patients and doctors - basically lying to them. We need to stop this before any other services will improve.
Your selected quotes about sum it up.
What kind of response have you gotten from this?
Treatment of ME/CFS is terrible so we need to give more money to those responsibile for this.
I remember reading some Wessely presentation where he claimed the BPS approach to this illness would lead to peace and harmony (or something to that extent).
I applaud Healthcare Trafford for recognising that such a survey was needed and that better care and understanding is required. The questions are relevant and the findings will surprise no-one who lives with this illness.
And I agree with the points made by @sarah darwins and @user9876. Until the corrupted BPS model and its protagonists hypothesis and spin on this illness is completely refuted, any initiatives to raise understanding are at risk of being undermined.
Unfortunately I live in an area that comes under the King's College Trust so I have first hand experience of how the BPS model and its false illness beliefs have compromised my health care.
Luckily I have an extremely supportive GP, who is also a member of my local CCG, who has been willing to listen to, observe, respect and consider my lived experience and the increasing bio-medical research being carried out and give as much support as possible within current guidelines. Without them I think I would have given up some time ago since I live alone, and the disbelief and contempt this illness brings on top of its debilitating signs and symptoms is both shocking and often soul destroying.
However, my innate resourcefulness, good humour and sense of injustice and the ridiculous has helped me stand my corner, take care of myself and make the best of a bad situation. And that's why I'm so hopeful and grateful for everything that is being done to make a difference.
Most sharks are completely harmless to Humans, in fact, they help keep the oceans and thus indirectly, healthy.
But I wouldn't like to be swimming bare naked with my nutsack within chewable reach of a shark...much same thing when considering what some docs have done
IS PROFESSOR SIMON WESSELY GUILTY OF MISLEADING
MEDICAL PROFESSIONALS AND OTHERS?
A Call for a Parliamentary Select-Committee
of Inquiry into UK ME/CFS Policy
Why is this cretin still around? He is the Tony Blair of the ME world.
Psychiatry is a huge business. We must understand everything is corrupt.
Can one be sure that he did not merely promise "PACE for our time"?
I live in Trafford, and have paid visits to hospitals both there and in Manchester. The hospitals I visited were as well equipped to deal with ME as medieval leech doctors were to deal with bubonic plague.
My GP practice is in Manchester. I'm pretty sure they don't believe ME/CFS is a physical illness there, so I rarely go if I can help it. Things would no doubt be different if BPS propaganda hadn't had such an insidious effect on people's attitudes to ME over the years - on medical staff first and foremost. In every clinic I attend I can't seriously be mistaken for anything other than entirely rational, and yet it's fairly evident that this is still not enough to overcome the entrenched belief in some medical staff that ME patients are primarily psych cases.
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