Julie Rehmeyer's 'Through the Shadowlands'
Writer Never Give Up talks about Julie Rehmeyer's new book "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand" and shares an interview with Julie ...
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Man With HIV Is Caretaker of Partner With CFS

Discussion in 'General ME/CFS News' started by Never Give Up, Aug 17, 2015.

  1. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    HuffPo has a story about a couple dealing with HIV and CFS here: http://www.huffingtonpost.com/dr-franky-dolan/voices-of-strength-franky-dolan_b_7867266.html .

    Great quote:

    "As a person living with HIV, watching the daily suffering of my partner who has chronic fatigue syndrome, I can tell you without hesitation, chronic fatigue syndrome is much worse than HIV. It's unfathomable that his disease is even named something as belittling and dismissive as chronic fatigue syndrome."

    What I like about it is that it shows the severity and variability of the illness, thereby raising general awareness levels. It is also framed within the context of 2 people loving and caring for each other; coping and living with crappy diseases; and trying to do something meaningful with their lives.

    They have created a website here: http://www.invisiblediseases.com/Home.html, haven't looked at it yet...
     
    ahimsa, Martial, Valentijn and 23 others like this.
  2. mermaid

    mermaid Senior Member

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    Cornwall, UK
    What a lovely heartwarming story!
     
  3. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    The authors posted this announcement earlier today:

    We always encourage people to tell their stories, and now we are telling ours!
    Huffington Post featured our story in Rita Wilson's ‪#‎VoicesOfStrength‬initiative! We were then exclusively invited to be official Huffington Post Bloggers! Get ready! We will be releasing articles of amazing people, hope, strength, art and love!! ...Please help us raise awareness and get the word out! We will be brave, honest, and take all of our fellow survivors and thrivers with us! Are you ready?! We are sooo excited, you guys!! Grateful to the moon!

    The Rita Wilson connection is interesting. I wonder if she might take an interest in ME/CFS? I sure hope so.
     
    Scarecrow, Valentijn, Effi and 2 others like this.
  4. Bob

    Bob

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    Never Give Up and beaker like this.
  5. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    That's great!
     

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