Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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Mainstream Canadian News Report

Discussion in 'General ME/CFS News' started by Old Bones, Sep 11, 2016.

  1. Old Bones

    Old Bones Senior Member

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    "Stigmatized Chronic Fatigue sufferers seek recognition"

    The following is a link to a news article published yesterday on one of Canada's mainstream media websites:

    http://www.ctvnews.ca/health/stigma...syndrome-sufferers-seek-recognition-1.3067130

    Having found it by "Googling", I'm not sure those who aren't looking for ME news stories will stumble upon it. Although it focuses more on the controversy than the facts, it is generally supportive.

    Update: I can now report that the video was aired on CTV's National news cast. In the "coming up" segment, it was described as a "debilitating illness".
     
    Last edited: Sep 11, 2016
    AndyPandy, Lindberg, Izola and 30 others like this.
  2. Gijs

    Gijs Senior Member

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    Very sad to see that young girl, it remains me how i was in when i was 25 years old. It is really a great medical scandal. I Always get teardrops in my eyes how nasty this disease is.
     
  3. Snowdrop

    Snowdrop Rebel without a biscuit

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    It's at the top of the most popular stories list.
    Let's keep it there by clicking through to the link to the site.
    It's getting lots of action on twitter too.
     
    Izola, rosie26, Mel9 and 15 others like this.
  4. L'engle

    L'engle moogle

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    Canada
    Surprisingly good article. I suspect it is mostly politics of scale that prevent research in Canada. They tend to fund a few key things that they think Canada can excel in and don't fund much for other things.

    Bigger countries like the US can support a wider range of research topics. I don't agree with this way of doing things but I can see why it happens in a Canada where research and progress have been stifled for a decade.

    The research in the US and overseas is too relevant to ignore and doing so makes Canada look like a backwater. The Canadian tendency to say 'Well that is American research and doesn't apply here in Canada' is basically a head in the sand type of philosophy.

    Interesting to note the CIHR itself doesn't say that CFS is not a legitimate illness, only that the independent panel decided this.

    The quotes from Bested are right on and she refers even to the most cutting edge research that has just come out in the last month.
     
    Glycon, Izola, Solstice and 14 others like this.
  5. *GG*

    *GG* Senior Member

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    Concord, NH
    Liked Dr Bested's comment. Seems like she is keeping up with the research. Wishing my friends to the North the best!

    @Prime Minister Justin Trudeau do more/something to help Your Citizens that are suffering!

    GG
     
    Solstice, Justin30, rosie26 and 8 others like this.
  6. Hutan

    Hutan Senior Member

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    New Zealand
    Well done to Jasmine and her mother for their involvement in this and to those who worked behind the scenes to make it happen. It was a helpful news item.
     
    Mij, ScottTriGuy, Justin30 and 10 others like this.
  7. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    I love how the narrator says, "too tired to even speak" and then they show Jasmin starting to speak, but unable to complete her thoughts. Happens around here all the time.
     
  8. TigerLilea

    TigerLilea Senior Member

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    Vancouver, British Columbia
    I was really sorry to see Dr. Alison Bested leave the Vancouver clinic as she had planned on setting up a blood bank to collect samples for future research.
     
    joeblow604 and ScottTriGuy like this.
  9. frog_in_the_fog

    frog_in_the_fog Test Subject

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    California
    This is the kind of thinking that makes me feel sad for us all. I wondered for years if I was actually physically sick because every doctor just said I was fine. This is something many of us face way too often.
     

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