Discussion in 'GcMAF' started by mojoey, Aug 2, 2011.
Thanks very much for filling me/us in
Thanks for this. I can get fresh raw colostrum from the Amish and wonder if that would help.
no because colostrum doesn t have gcmaf you need the bacteria
i will start micro doses of injectable gcmaf in the next few weeks. i have been bedbound for several years and am overly sensitive to everything but desperate to get well........any tips from injectable gcmaf users on how to avoid IRIS and other bad side effects. my disease is viral in nature: hi titres, low cd counts, hi inflammation, poor methlation, insomnia, 4 am anxiety and diastolic dysfuntion are the worst of a the multitude of symptoms. any and all advice welcomed.
Good luck with your injections! It is usually advised to take an antihistamine while taking GcMAF. Take it an hour or so before an injection and then daily. Some add an H2 blocker too, but since these block acid you'd have to take that into consideration.
Some things that seem to help with inflammation are a couple of grams of curcumin daily and for those who do well with it, LDN.
Have you and your doctor decided on what dose you will take?
Let us know how it goes.
maybe benicar if you have high 1,25 vitamin D
you did not understand me. I don't mean use colostrum instead of maf. i meant use fresh unprocessed colostrum instead of powder.
Just to pile in and possibly add to the confusion, my understanding is that the MAF 878 starter is in colostrum and the powder is that colustrum plus the bacteria cultured in it, freeze-dried. So if you added fresh colostrum you'd just be adding more colostrum to what's already in there.
Can't do MAF 878--uses kefir.
There's a non-dairy version now that uses agar, without kefir - I'm just about to try it.
Sasha, where's the info on that?
Admittedly 878 is much cheaper. And I'm not doubting it makes some GcMAF. But from everything I've read, and knowing the specialties of those in 314 vs 878, it seems 314 is much more potent, no?
OTOH getting it is a hassle. But I am going to test and wait for nagalase. Someone said my nagalase results would take six weeks. Is that really true? Why is that?
The time for the nagalase test varies with how busy the lab is. It looks like, with the rise in the interest in GcMAF, they are getting a lot more requests for the test and have had trouble getting the results back quickly. I found that I could call them after a few weeks and they would give me an estimate of when my sample would be run.
I've been sent:
obtain approximately 100 g of agar from eBay
Add agar to 2 1/2 L of bottled water
Stir vigorously with wooden spoon until a mixture with the consistency of a thick soup is obtained
add container all probiotic MAF 878
Stir vigorously with wooden spoon again mixing thoroughly
Loosely cover the container so that Debis or mold do not contaminate the mixture
Let Mature at room temperature for five days stirring at least once a day
Put container in refrigerator
Take 75 ML (2 1/2 ounces) each day in the morning with breakfast
Don't know - I've only tried 878.
Sasha, that's peculiar, because Dr. Enlander specifically indicated a while back that the idea was to use both kefir and yogurt to get the widest variety of strains to produce the MAF...
How do you like the 878?
I just don't even know if they've tested agar to see if it actually makes reasonable amounts of gcmaf.
I just think 314 sounds more potent and tested.
Good point - possibly it's a trade-off. I want to try the dairy-free version, though, in case dairy is giving me problems.
I started the 878 last summer, had a rapid improvement in sleep within the first few days I think, and after about 8 weeks a bit of an increase in my ability to be upright (not much but enough to be helpful for me). Unfortunately, I also had more flu-like malaise so had a two-month holiday from it. On restarting, I had the same rapid improvement in sleep but so far (four months in) no other apparent effects, either good or bad.
Let us know, then. Sleep is a good thing!
The potency of the colostrum can effect the MAF effects.
So it may depend on ths source of the colostrum.
There is a feeling that first day colostrum may be the strongest.
I'm the one who said that, and am still waiting for my retest results (will post when I have them). It wasn't only my nagalase tests from HDRI that took awhile, I think my methylation testing took more than 4 weeks as well.
As Sushi suggested, they (HDRI) are the only ones testing nagalase, and they definitely do the most comprehensive methylation testing. There is currently a decent demand for both, hence the long lead-time.
I'm not suggesting you not get the test, just wanted to give you an idea of the timeline so you can plan appropriately. As to estimates, I was given several bad estimates back when I had my original nagalase testing..."it will be next week". Called back "next week" and "it will be next week", then called back the following week, "we're hoping it will be next week". I find it quite frustrating, and if I could have these tests run elsewhere, I would (even if it cost more).
Symptomatic, thanks. I was totally forgetful today at the doc's, and forgot to tell them to take blood for nagalase before my IV drip. So I'll have to do it next week. I need to put an alert on my iPhone. I really hope it doesn't take nearly six weeks.
You can also try a Google Site Search
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