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Mady Hornig: How do you solve a problem like CFS?

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Mar 4, 2013.

  1. Phoenix Rising Team

    Phoenix Rising Team

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    View the Post on the Blog

    View the Post on the Blog
    maryb and Little Bluestem like this.
  2. Sasha

    Sasha Fine, thank you

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    Thanks, Simon - another great article. We're lucky to have you explaining this stuff to us so clearly!
    Simon likes this.
  3. SOC

    SOC Back to work (easy, part-time work)

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    Excellent article, Simon! We are very fortunate to have brilliant researchers like Dr Hornig working on ME/CFS.
    Little Bluestem and Simon like this.
  4. Simon

    Simon

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    Thanks! And I agree we are really lucky to have people like Mady Hornig on the case, I think it's going to make a big difference. She's also seems genuinely concerned about patients, and willing to engage with them too. She was very good about answering quite a few detailed questions, and she will be speaking at this year's Invest in ME Conferernce in May - about her pathogen study.
    Valentijn, Ember and Sasha like this.
  5. snowathlete

    snowathlete

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    "They infected mice with the same bacteria that cause strep throat and found obsessive-compulsive behaviour similar to that seen in humans (for mice it includes repeated back-flipping)."

    I thought that was just me. Maybe that's why I'm so tired?
    backflip.gif

    Thanks for the article Simon, I thought it was great, and really exciting how Mady Hornig works.
    rosie26, John Mac, heapsreal and 5 others like this.
  6. Allyson

    Allyson Senior Member

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    Thanks indeed SImon, i saw on the news in the last few days a new treatment for HIV - a pill they give patients for 2 weeks which causes the (?latent) virsus to emerge so they can they hit it.

    Sorry do not recall more details sucha s name of drug or place ,...though i suspect it was in Australia. I saw it ont he evening news ulletin so likely the ABC.
  7. Simon

    Simon

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    That animation is absolutely brilliant! Great work.

    Actually, Mady Hornig had a video clip of the mouse back flipping in her presentation but due to a technical glitch it wouldn't play :(

    I saw that too, amazing stuff. Latency is a big reason they thought HIV could never be cured: as a retrovirus it integrates into your normal DNA - if its replicating drugs can block the replication and along with immune system can kill those cells too. If its latent and just sitting there in a dormant state it's completely safe, and can then reactivate later. Study was presented at the Retrovirus conference in Atlanta by an Oz professor, but hasn't been peer-reviewed or published yet.
    maryb and Allyson like this.
  8. Marco

    Marco Old blackguard

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    Thanks Simon
    I have to admit that I'm mightily impressed with Mady Hornig's approach.
    Simon likes this.
  9. Overstressed

    Overstressed Senior Member

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    Thanks Simon, great article! This is off-topic, but do you know if she's married ? ;)
    Personally I think, if she would find a pathogen, I think she would be able to solve many neurological conditions.


    Best regards,
    OS.
    jimells likes this.
  10. Simon

    Simon

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    Mady Hornig quote
    Mady Hornig has been it touch to say how pleased she was to have her work featured here, and also said this, which I quote with permission:
    I was very touched by that.


    Sorry, OS, can't help!
    rosie26, Kati, SpecialK82 and 6 others like this.
  11. Sasha

    Sasha Fine, thank you

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    That's great - as a patient, I'm really delighted to hear that from a researcher.
    Kati and Blue like this.
  12. jimells

    jimells Senior Member

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    Simon, do you have any idea how long the PANDAS research took? As in, was it months, years, or decades?

    Thanks for another great article. I look forward to reading more of your work.
    Simon likes this.
  13. Simon

    Simon

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    Thanks:) I think PANDAS work has gone on for decades, but I think Hornig's PANDAS work on mice was over a couple of years, but not really sure.
  14. Esther12

    Esther12 Senior Member

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    Thanks a lot Simon.

    It made learning fun! It was really nice to read something informative that wasn't a challenge to get through. Looking forward to future articles.
    Simon likes this.
  15. Simon

    Simon

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    Thanks - glad you enjoyed it. You should have seen the original talk: brilliant, but almost in Greek if you're a non-scientist. Will try to reduce everything to cartoon mice and pot-smoking where possible.
  16. Esther12

    Esther12 Senior Member

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    I'm grateful for the Beano version. Thanks a lot for working out how to translate her talk for the rest of us.
    Simon likes this.
  17. beaker

    beaker CFS/ME 1986

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    Thanks for the article. It's nice to know we have someone like that on our team !
    Simon likes this.
  18. Simon

    Simon

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  19. Waverunner

    Waverunner Senior Member

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    Simon: Thanks. Hornig seems to be a great scientist. In a few years, we all should be able to have whole genome sequencing done at a reasonable price. This will be a point, where a wave of new information will flood the medical field. Scientists like Hornig hopefully will benefit from this.
    Simon likes this.
  20. CallieAndToby

    CallieAndToby Senior Member

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    It can happen in teenagers and young adults also (the pandas or pans).

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