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@charles shepherd Wrote:
“We have made it clear that people with ME/CFS are not capable of performing fundraising events that involve intense physical activities such as marathon runs/swims/cycle rides, skydives etc and should not attempt to do so
This remains our position
However, for people with ME/CFS who have made a significant degree of improvement, or have recovered, and are now able to do a sponsored walk, or even something such as a half marathon if they have fully recovered and are now well, then this is an acceptable way of raising funds for a charity”
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
But that’s not what’s been going on, is it Charles. The people who do the extreme challenges and Half Marathons do not say that they have Fully Recovered from ME
Not “Fully Recovered from ME” Not according to this article (an article which the ME walker/fundraiser had approved) that describes pushing herself to raise funds for the MEA with expectation of being bed bound for weeks:
‘Wirral girl defies ME illness to set sponsored walk challenge’
http://www.wirralnews.co.uk/news/local-news/wirral-girl-defies-illness-set-6569674
‘A TEENAGER who was diagnosed with ME at the age of 13 is to set aside her illness and take on a mountain-walking challenge.
Charly Poole, from Wallasey, is determined to raise money for the ME Association ... to help others who also suffer from the illness.
In July she wants to walk up Moel Famau in north Wales to raise as much cash as she can.
Charly, 17, said: "To a healthy person, walking up Moel Famau may seem little and ‘easy’ but for someone suffering from ME it’s like hell and could make me bed-bound for weeks.
"But I am determined to complete this goal for myself and for the charity."…..
… Charly’s grandma Joan Poole, 71, said: "It’s horrible to see her when she has to force herself to walk. And I’ve seen Matty have to carry her.”….
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
There is currently yet another person (who says they have ME and been ill with ME for a year), Not “Fully recovered”, doing an endurance/fitness challenge to raise funds for the MEA, by doing the 'Zombie Evacuation Race'.
https://www.justgiving.com/Gavin-Ho..._content=Gavin-Holmes1&utm_campaign=pfp-share
“As a sufferer of M.E, for the past year I have decided that it is time to do something for a charity that will help with the condition for me and many others through their research and training. The M.E Association is a fantastic charity that deserves support and funding to continue it's great work. The Zombie evacuation is an obstacle race, where participants are chased by "Zombies"….”
http://zombieevacuation.com/
'The Zombie Evacuation Race Only the fittest will survive!!! '
'Run for your life through a 5km course dodging the UNDEAD and navigating a multitude of challenging obstacles designed specifically to slow down your escape from relentless ZOMBIE horde who are hungry for fresh brains! Survive or be become one of them!!
~~~~~~~~~~~~~~~~~~~~~~~~~~~
Running a Half Marathon for the MEA but Not “Fully recovered” from CFS:
http://www.meassociation.org.uk/201...ner-emily-does-it-all-for-the-me-association/
Emily Wren, who is recovering from Chronic Fatigue Syndrome, took part in the Reading Half Marathon on Sunday (March 20) to raise money for the ME Association. Months of concern that her training schedule might be hijacked by her illness vanished as she made it across the finishing line
http://runningforme2011.wordpress.com/2011/02/26/do-i-or-dont-i/#comments
“It’s the day before the next race. Number 2 of 3. And i’m weighing up many options as I rest up.
I haven’t done any running since my 8k last Saturday, and I’m starting to feel a little bit nervous. Trying to train, live a normal life and not fall ill is proving to be difficult.
I haven’t done any running since my 8k last Saturday, and I’m starting to feel a little bit nervous. Trying to train, live a normal life and not fall ill is proving to be difficult.
This week has been really hard. Personal problems, both at home and work, have left me feeling exhausted and dealing with CFS symptoms as well as battling with a cold. Unfortunately this has meant giving running a back seat.
So here comes the big decision. Do I run 5 or 10k at the event tomorrow?”
.
@charles shepherd Wrote:
“We have made it clear that people with ME/CFS are not capable of performing fundraising events that involve intense physical activities such as marathon runs/swims/cycle rides, skydives etc and should not attempt to do so
This remains our position
However, for people with ME/CFS who have made a significant degree of improvement, or have recovered, and are now able to do a sponsored walk, or even something such as a half marathon if they have fully recovered and are now well, then this is an acceptable way of raising funds for a charity”
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
But that’s not what’s been going on, is it Charles. The people who do the extreme challenges and Half Marathons do not say that they have Fully Recovered from ME
Not “Fully Recovered from ME” Not according to this article (an article which the ME walker/fundraiser had approved) that describes pushing herself to raise funds for the MEA with expectation of being bed bound for weeks:
‘Wirral girl defies ME illness to set sponsored walk challenge’
http://www.wirralnews.co.uk/news/local-news/wirral-girl-defies-illness-set-6569674
‘A TEENAGER who was diagnosed with ME at the age of 13 is to set aside her illness and take on a mountain-walking challenge.
Charly Poole, from Wallasey, is determined to raise money for the ME Association ... to help others who also suffer from the illness.
In July she wants to walk up Moel Famau in north Wales to raise as much cash as she can.
Charly, 17, said: "To a healthy person, walking up Moel Famau may seem little and ‘easy’ but for someone suffering from ME it’s like hell and could make me bed-bound for weeks.
"But I am determined to complete this goal for myself and for the charity."…..
… Charly’s grandma Joan Poole, 71, said: "It’s horrible to see her when she has to force herself to walk. And I’ve seen Matty have to carry her.”….
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
There is currently yet another person (who says they have ME and been ill with ME for a year), Not “Fully recovered”, doing an endurance/fitness challenge to raise funds for the MEA, by doing the 'Zombie Evacuation Race'.
https://www.justgiving.com/Gavin-Ho..._content=Gavin-Holmes1&utm_campaign=pfp-share
“As a sufferer of M.E, for the past year I have decided that it is time to do something for a charity that will help with the condition for me and many others through their research and training. The M.E Association is a fantastic charity that deserves support and funding to continue it's great work. The Zombie evacuation is an obstacle race, where participants are chased by "Zombies"….”
http://zombieevacuation.com/
'The Zombie Evacuation Race Only the fittest will survive!!! '
'Run for your life through a 5km course dodging the UNDEAD and navigating a multitude of challenging obstacles designed specifically to slow down your escape from relentless ZOMBIE horde who are hungry for fresh brains! Survive or be become one of them!!
~~~~~~~~~~~~~~~~~~~~~~~~~~~
Running a Half Marathon for the MEA but Not “Fully recovered” from CFS:
http://www.meassociation.org.uk/201...ner-emily-does-it-all-for-the-me-association/
Emily Wren, who is recovering from Chronic Fatigue Syndrome, took part in the Reading Half Marathon on Sunday (March 20) to raise money for the ME Association. Months of concern that her training schedule might be hijacked by her illness vanished as she made it across the finishing line
http://runningforme2011.wordpress.com/2011/02/26/do-i-or-dont-i/#comments
“It’s the day before the next race. Number 2 of 3. And i’m weighing up many options as I rest up.
I haven’t done any running since my 8k last Saturday, and I’m starting to feel a little bit nervous. Trying to train, live a normal life and not fall ill is proving to be difficult.
I haven’t done any running since my 8k last Saturday, and I’m starting to feel a little bit nervous. Trying to train, live a normal life and not fall ill is proving to be difficult.
This week has been really hard. Personal problems, both at home and work, have left me feeling exhausted and dealing with CFS symptoms as well as battling with a cold. Unfortunately this has meant giving running a back seat.
So here comes the big decision. Do I run 5 or 10k at the event tomorrow?”
.
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