Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Lyme in Australia???

Discussion in 'Lyme Disease and Co-Infections' started by merylg, Feb 13, 2012.

  1. merylg

    merylg Senior Member

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    Sydney, NSW, Australia
  2. alex3619

    alex3619 Senior Member

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    Hi merylg, I caught the add for this yesterday but my power went down from a storm so I missed it. I suspected this is what they were going to say. My best guess is that if this is Lyme it is native and a slightly different strain, which would make our testing even more inaccurate. Also their numbers are probably wrong. If Lyme is this endemic, then the numbers are likely to be over 80,000 not just thousands. Bye, Alex
     
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  3. ChuckG

    ChuckG

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  4. merylg

    merylg Senior Member

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    Sydney, NSW, Australia
  5. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    interesting storie, but a researcher tried to get this knowledge out 17 yrs ago about lyme in australia, maybe they just couldnt hear him, right! I would like to get tested properly for it as i have had a consistant rashes on my back and shoulders with a round target rash in middle of my back and i have had some improvement with longer term abx have helped. Doesnt the government realise that if they can treat people with this condition that they can improve them to a level that can get people and with the improvement in their condition that can earn wages and pay taxes that go towards the health system.
     
  6. ChuckG

    ChuckG

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  7. hixxy

    hixxy Senior Member

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    Is testing available in Australia?
     
  8. alex3619

    alex3619 Senior Member

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    Hi hixxy82, my impression is that testing IS available, but here is how you do it for cheap with the same effectiveness. Get a large crayon and a blank sheet of paper, write "Lyme test negative" and you saved yourself a whole lot of cash. Both in Australia and Canada we are finding that for reliable testing blood has to go to the USA, according to most I hear from. Bye, Alex
     
  9. hixxy

    hixxy Senior Member

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    Have you had lyme testing done Alex? What are the currently recommended labs/tests overseas? I've seen many different recommendations on the web. Not all of them the same!
     
  10. alex3619

    alex3619 Senior Member

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    Logan, Queensland, Australia
    Hi hixxy82, I have not had Lyme testing done, but I know many who have (not from Australia though). The Australian reports I have heard of are all second hand, so I cannot be 100% sure. However, back in 1999 it was reported that there were only 7 cases of Lyme in Australia per year that were not due to overseas travel (the 1999 Sydney ME/CFS conference). Part of this will be that doctors simply don't get patients tested however. Personally, I think if you have the bulls-eye rash or were bloodsucked by a tick just prior to getting ill, then testing should be routine. Maybe if testing were more routine they would invest in better tests.

    The recommendations will of course vary because they are based on experience: people try a lab and decide if they are happy with the service. Bye, Alex
     
  11. hixxy

    hixxy Senior Member

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    Lyme testing just seems like a big expensive gamble.
     
  12. taniaaust1

    taniaaust1 Senior Member

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    Tonight TodayTonight had a segment on about Lyme in Australia again. The main lymie they interviewed said she saw a doctor who has found it in several of his patients and knew right away that is what she had. Her blood was then sent to America which proved it.

    I think it may of been a different one to their last one as I didnt recognise it but have seen it mentioned on one of our current affair shows before (I cant get that youtube thing up to see if it was the same).

    Im one who has wondered about lyme at times too (thou I do fit the subgroup of like Dr Cheney patients with my symptoms and the ME progression he talks about).

    Where I go camping.. does have ticks. I once while camping found one crawling up my tshirt towards my neck, thou it wasnt fat so I dont think it had fed on me. (only about 50% of Lymies I think it is, apparently get the bullseyes rash)
     
  13. taniaaust1

    taniaaust1 Senior Member

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    Sth Australia
  14. Adster

    Adster Senior Member

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    I hope Lyme in ticks is not widespread here, I've had 2 this week!

    They were almost too small to see.

    tick.jpg
     

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