Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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Lyme and Post Exertional Malaise

Discussion in 'Lyme Disease and Co-Infections' started by Ronan, Aug 10, 2012.

  1. Ronan

    Ronan Senior Member

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    Hi,

    I have been sick for over 10 years now am have also been under the impression that it was ME. I have now just tested positive for Bartonella and my ME doctor says this is the probable root cause of all my problems. I am going to start treatment now for Lyme. I am cunfused about one thing though. I have always had big problems with post exertional malaise but i thought this was not a symptom of Lyme? Is this the case or is this also a Lyme symptom?

    Thanks!
     
  2. Ema

    Ema Senior Member

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    Midwest USA
  3. Ronan

    Ronan Senior Member

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    Interesting Ema. Thanks. I was tested for Bartonella and Borrellia but not Babesia and from that thread it seems Babesia cause PEM and is often a coinfection with Lyme.
     
  4. richvank

    richvank Senior Member

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    Hi, Ronan.

    I wouldn't rule out other coinfections beside Babesiosis as causes for PEM. Actually, my current view is that Lyme disease can produce ME/CFS in those who are genetically susceptible, whether or not there are coinfections. Borrelia and at least three of the coinfections have been found to produce oxidative stress, which places a demand on glutathione. Borrelia depletes cysteine and glutathione in its host. Any factor that contributes to sufficiently depleting glutathione can contribute to producing ME/CFS, in my hypothesis, and if you have ME/CFS, you will have PEM/PEF.

    Best regards,

    Rich
     
  5. Ronan

    Ronan Senior Member

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    I'll have to ask my doc about it on my next visit and see if i should be tested for any other coinfections. I have been on GcMAF for a year and a half and he claims to be getting good results treating Lyme after patients have first got their Negalase levels into normal range before treating the Lyme.

    Thanks!
     

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