Julie Rehmeyer's 'Through the Shadowlands'
Writer Never Give Up talks about Julie Rehmeyer's new book "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand" and shares an interview with Julie ...
Discuss the article on the Forums.

Luleå Sweden hosts Psychosomatic Conference, EAPM 2016 June 16-18

Discussion in 'General ME/CFS News' started by Asa, May 22, 2016.

  1. Asa

    Asa Senior Member

    Messages:
    175
    Likes:
    526
    Notice of the upcoming European Association for Psychosomatic Medicine (EAPM 2016) conference in Luleå, Sweden was shared by @Denise in the discussion section of another thread ---> http://forums.phoenixrising.me/inde...rapy-guided-self-help-treatment-getset.44749/

    Just thought I'd highlight it in a separate thread to better ensure that PR's Scandinavian members, especially, would be aware...

    Conference organizer: Ursula Werneke of Umeå University. Conference attended/endorsed by Ullakarin Nyberg, Vice President Swedish Psychiatric Association. Speakers include May Blom, who participated in Fokusrapport--Kroniskt Trötthetssyndrom (2009)* -- the primary, fraudulent text used to deny care, insurance and disability assistance to people with ME in Sweden.

    *http://www.vardgivarguiden.se/globa...er/fr_kroniskt_trotthetssyndrom_2009_webb.pdf

    (Peter White -- also reported to be part of this conference -- was interviewed by Blom and others for the above-linked Fokusrapport, according to the above-linked Fokusrapport (p. 15). To my knowledge, no conflicts of interest were reported in the Fokusrapport. Compare Coyne's report on White conflicts of interest, http://web.archive.org/web/20160522...rventions-for-medically-unexplained-symptoms/

    And White is a colleague too of Fink? http://web.archive.org/web/20160522.../04/karina-hansen-4-timeline-torture-tragedy/

    http://justiceforkarina.webs.com/apps/blog/show/42622428-skjoldans-letter-to-71-comitee)


    Additional conference speakers include: Per Fink (http://justiceforkarina.webs.com/),

    Michael Sharpe [PACE investigator] will be teaching a class on "How to succeed in clinical research". By attending, you will "Understand different study designs" and "Gain tips on writing up your results for publication". [How can this be real??!!],

    Simon Wessely... "I have received a speakers fee from Janssen for a non promotional talk on psychological management of chronic fatigue syndrome."


    Conference partners include Lundbeck -- accused (by Danish physician Stig Gerdes) of conflict-of-interests with Per Fink, http://forums.phoenixrising.me/index.php?threads/press-release-from-rebecca-hansen.29011/page-2#post-508084

    [Edit: Karina Hansen was forcefully taken in 2013. This same year the Lundbeck Foundation donated DDK 11.5 million to Fink's project to research "Functional Somatic Syndromes". Lundbeck names CFS as one of the FSS to be studied. Lundbeck: "About 5 % of the Danish population suffers from FSS accounting for 10-20 % of the health care expenses."
    http://www.lundbeckfonden.com/media/LF2013UK-Review.pdf

    http://web.archive.org/web/20160522223133/http://bmcfampract.biomedcentral.com/articles/10.1186/s12875-015-0393-8]


    http://web.archive.org/web/20160522134421/http://eapm2016.com/
    http://web.archive.org/web/20160522135129/http://eapm2016.com/speakers/
    http://web.archive.org/web/20160522142131/http://eapm2016.com/programme/
    http://web.archive.org/web/20160522142753/http://eapm2016.com/partners/
     
    Last edited: May 22, 2016
    BurnA, Hutan, Jeckylberry and 5 others like this.
  2. mango

    mango Senior Member

    Messages:
    905
    Likes:
    4,979
    Thank you @Asa (I can't click 'like' on this one...)

    :depressed::nervous::cautious::thumbdown::(:mad::eek::bang-head:

    RME (the Swedish ME Association) is aware... quietly keeping their eyes on things..
     
    AndyPandy, Justin30, Asa and 3 others like this.
  3. Cheshire

    Cheshire Senior Member

    Messages:
    1,122
    Likes:
    9,003
    Sounds like a joke, surreal... :eek:

    I would guess expertise in how to get positive outcome even if your trial is a failure is a very needed skill in the psychosomatic field.
     
    Hutan, Justin30, SDSue and 12 others like this.
  4. Comet

    Comet I'm Not Imaginary

    Messages:
    677
    Likes:
    3,627
    Will I be able to order the course through late nite TV or the interwebs? :jaw-drop:
     
    barbc56 and Asa like this.
  5. Comet

    Comet I'm Not Imaginary

    Messages:
    677
    Likes:
    3,627
    Fee? Non promotional? :rofl: :rolleyes: :eek: :wide-eyed: :bang-head:
     
    Sean, SilverbladeTE, barbc56 and 2 others like this.
  6. MEisnotMUPS

    MEisnotMUPS

    Messages:
    77
    Likes:
    386
    They are all colleagues in Eurasmus, their site has now been taken down, but you can read its members here
    http://forums.phoenixrising.me/inde...edically-unexplained-symptoms-eurasmus.44439/
    (Fink, White) (and Rosmalen and Knoop, two dutch colleagues who are currently on a health council committee with task to write advisory report on ME)

    EAPM has its own journal http://www.jpsychores.com/content/edboard
    Eurasmus members (like Henningen are editors) White, Wessely, Sharpe all on advisory board, together with one of the Dutch Health Council Committee members (Rosmalen)

    People please sign if you can, this is why this petition is so important ME is not MUS/MUPS, the biopsychosocial model does not apply to ME!! We have 4 MUPS professionals on a health care council committee with the important task to write advisory report on ME to dutch parliament, who have direct links via Eurasmus /EAPM or their journal to Fink, White, Wessely, etc. .....

    Please sign.
    https://petities.nl/petitions/me-is...e-to-the-advisory-report-assignment?locale=en
     
    Last edited: May 28, 2016
  7. Ben H

    Ben H OMF Correspondent

    Messages:
    771
    Likes:
    8,589
    U.K.
    Quick edit :thumbsup:
     
    Last edited: May 28, 2016
    GreyOwl, BurnA, Snow Leopard and 4 others like this.
  8. Bob

    Bob

    Messages:
    9,844
    Likes:
    33,947
    England (south coast)
    Asa and mango like this.
  9. mango

    mango Senior Member

    Messages:
    905
    Likes:
    4,979
    The conference started today... :(

    Please let us know if you see or hear any media coverage or something like that.
     
    Esther12 likes this.
  10. Yogi

    Yogi Senior Member

    Messages:
    1,131
    Likes:
    6,885
    The twitter hashtag is #EAPM16


    Live feed here

    https://twitter.com/hashtag/eapm16?f=tweets&vertical=default&src=hash

    I :heart::heart::heart::heart:LOVE ME Militant :heart::heart::heart::heart:!!! Well done:star::star:. MEMilitant always gatecrashes various hashtags and highlights the truth.








    Please RT.

    anyone else on twitter can do the same and use the hashtag. Would be good to see all of Tuller's articles on this tag.
     
    Last edited: Jun 16, 2016
    Hutan, AndyPandy, GreyOwl and 3 others like this.
  11. MEisnotMUPS

    MEisnotMUPS

    Messages:
    77
    Likes:
    386
  12. Keith Geraghty

    Keith Geraghty Senior Member

    Messages:
    155
    Likes:
    3,290
    Is chronic fatigue syndrome an inflammatory disorder?
    R. Strawbridgea,b, M.-L. Sartora,c, A.H. Younga,b, A. J Clearea,b a) Centre for Affective Disorders,
    Background: Chronically elevated inflammation provides a putative target in the search of a meaningful biomarker for chronic fatigue syndrome (CFS). While research has investigated levels of inflammatory biomarkers in people with CFS compared with healthy controls, these groups have not yet been examined at a meta-analytic level. To evaluate the degree and direction of these associations, we identified the existing evidence and combined these.

    Method: A systematic review sought studies that compared levels of inflammatory proteins in people with a diagnosis of CFS. Using data from the included studies, meta-analyses compared levels of biomarkers measured in at least four studies. Results: 48 studies were included following the systematic search, and thirteen biomarkers were examined in analyses. Tumor necrosis factor-alpha (TNFa), transforming growth factor-beta (TGFb), c-reactive protein (CRP), interleukins 2 (IL-2), 4 (IL-4), 1-beta (IL-1b) and 12 (IL-12) were elevated in people with CFS compared to controls; the remaining biomarkers (IFNy, IL-1a, IFNa, IL-8, IL-10 and IL6) were not different between the two populations.

    Conclusion: It is not possible at this stage to elucidate whether high inflammation in CFS is of primary pathophysiological importance or secondary to other factors (e.g. stressful experiences, sleep disturbances, physical deconditioning, endocrinological changes), and the role of inflammatory alterations in treatment is not addressed by these analyses. However, these results have potentially important implications for the understanding, classification and treatment for CFS, pending further investigations of inflammatory mechanisms.

    My interpretation of their conclusions: the evidence shows clear inflammation in ME/CFS - however we dont want to say this is due to some underlying pathological process; we want to keep to our narrative that stress and psychological factors must be the cause - we know this is an objective function of an immune problem, which we previously argued didnt exist, but we need future research so we can keep looking at psychological factors.
    Personality and chronic fatigue syndrome: a biopsychosocial
     
    jodie100, Valentijn, Comet and 5 others like this.
  13. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

    Messages:
    2,018
    Likes:
    5,114
    USA
    In case anyone wants to be blinded by the pink background, here's the URL for the abstract:
    http://www.jpsychores.com/article/S0022-3999(16)30290-2/abstract

    R. Strawbridge(a,b), M.-L. Sartor(a,c), A.H. Young(a,b),
    A.J Cleare(a,b)
    a Centre for Affective Disorders, Institute of Psychiatry,
    Psychology & Neuroscience, King's College London, London, UK
    b The NIHR Biomedical Research Centre at the South London and
    Maudsley NHS Foundation Trust and the Institute of Psychiatry,
    Psychology and Neuroscience, King's College London, London, UK
    c School of Medicine, University of Padua, Padua, Italy
     

See more popular forum discussions.

Share This Page