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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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LSMAM Ruggiero & Gulisano Florence IT - NEW ME/CFS Office maf 314 oral probiotic

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lartista

Senior Member
Messages
139
Hi there all ME/CFS sufferers:D... I have made contact with Prof. Ruggiero & he has referred me to Prof. Gulisano. I will try to get all the details of this NEW ME/CFS Clinic opening in Florence, Italy. I am under the wonderful care of Dr. Nancy Klimas, but am always trying to connect the "geniuses of our illness". If possible I will get an appointment in Florence, see what studies & treatment they offer, & if possible video record it. Then I present the idea of a collaboration with Dr. Klimas & NOVA. In the mean while, when I hear anything I will report back. Here is my YOUTUBE CHANNEL: http://www.youtube.com/user/kaiserMECFS you can always subscribe to me their with all my treatments from Nancy & other little tricks of the trade I use to help myself with our current fate...

Dear Ms. Owens,
We shall be more than happy to visit you and provide counseling as soon as the medical office, named LSMAM, will be officially open.
Prof. Massimo Gulisano, who is reading in cc, is the one whom to ask when the office will be officially open or if there are alternative
solutions to see you while we wait for the inauguration of the office. I am sure that he will provide you with all the information.
Very truly yours,
Marco Ruggiero
 
A

Astrea

Messages
10
Location
Atlanta Metro
Hello. This is great news. I hope. I have a 17 year old daughter who's been doing research on CFS/ME Epstein Barr Virus. She often knows more about the illness than the doctor's do. I'm sure there are many others that are young adults researching on their own as well. I also have CFS/ME. I was diagnosed in 1991 after coming down with Mononucleosis. The same thing happened to my daughter. Around her 16 the birthday, she came down with mono and six months later was diagnosed with CFS/ME. After she was diagnosed with CFS...all sorts of things started happening. POTS and possibly EDS. She was very healthy and active before getting sick. Anyway, she's determined to get to the bottom of the CFS/ME mystery. Her quality of life has been disrupted. She is finishing her senior year via virtual classes. She's very bright. She's made a couple videos. One for her classmates who kept asking her why was she absent so much? Even after she's explained why a zillion times. Some people think because you look fine on the outside, you couldn't possibly be sick. Please take a moment to view her video's. She's just started. We'love to collaborate. Thanks. Thanks for helping educate the public and all your hard work researching.
This is a promo. She wont let me put the video up until it's finished. Stay Tuned. http://www.youtube.com/watch?v=gLhoS3W_fi8
Here's the video to explain why she's absent. http://www.youtube.com/watch?v=_TXRidx-gXQ
This is her other channel: http://www.youtube.com/watch?v=iuFOmJ7RZco
astreafall@aol.com lizziefall@aol.com
 
L

lartista

Senior Member
Messages
139
I have met your daughter.... she is darling-ly pretty....

Hi there... I have already seen your daughter's videos and she is quite the beautiful young lady! When I went to her youtube channel, I saw that she has already watched numerous of my videos as she had they listed on her page. Who's your doctor? What state are you in? I did not see whether I am writing to a male or female...? Any way, what other viruses are you active for? I am upgrading on quite the bit of meds from Dr. Nancy Klimas.... Kisses, Francesca:angel:
 
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