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Low dose Naltrexone

Discussion in 'General Treatment' started by Cort, Jul 22, 2009.

  1. Diva55

    Diva55 Member

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    Hi Vdt33
    What a shame that you had to stop is after wonderful improvements.

    I wrote this in a post earlier concerning candida / thrush (as I have developed it):
    With the lesions in your mouth - did you get them under the tongue? It's just I got them and wondered if they might be connected with LDN?

    I hope you manage to get thrush under control - it seems to have attacked my body in a huge way when I haven't had an attack this bad for many years!

    Best wishes
    Diva
     
  2. Diva55

    Diva55 Member

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    Hi Sushi
    Love the image of the LDN good guys :cool:pushing the bad guys out of the system! Shows my weird dreams are now affecting my imagination! Isn't it strange that we are cheering the onset of new bugs / viruses!
     
  3. Diva55

    Diva55 Member

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    Vitamin D & LDN

    Well I went a-googling and couldn't come up with anything concrete on why Vitamin D is important with LDN.

    Seems Vitamin D is an immune modulator as is LDN so they appear to work in synergy.

    However the advice seems to be that testing is needed to acheive the optimal personal dosage of Vit D.

    I'm hoping that the Glasgow LDN conference will distribute notes / videos afterwards as they have a Vitamin D agenda point.

    So I'll try Vitamin D in increased doses as my immune system needs all the help it can get.
     
  4. valia

    valia Senior Member

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    Thanks Diva,

    I don't know what form it will come in, perhaps liquid as doc said to keep it in fridge and my 3 month prescription has been split into 3 monthly deliveries, so I should be able to reduce dose if I have problems. I will let you know how I get on.
     
  5. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Mercola wrote about Vit D and immunity today: "A new study has confirmed that vitamin D plays an important role in activating your immune defenses against infectious diseases like the flu." http://articles.mercola.com/sites/a.../vitamin-d-deficiency-is-why-you-get-flu.aspx

    Sushi
     
  6. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    I am taking 8,000 IUs of Vitamin D3 with 4.5mg of LDN. I had my blood tested for Vitamin D when I was on Vitamin D dose of 4,000IUs in October of 2009 with my physical and the value was under 40. So I wanted a higher level. I had another blood test a few weeks ago, but will not see the Dr for another few weeks, so must be OK. Otherwise they would have called me. Interested in seeing what my cortisol levels are doing after about 1 year since my last test.

     
  7. Diva55

    Diva55 Member

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    Hi Sushi
    Thanks for the link - very interesting. Makes the link / synergy between Vitamin D & LDN more concrete!

     
  8. Diva55

    Diva55 Member

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    Hi
    That's a lot of vitamin D but as your bloods show you need it. It's difficult for me with no testing for Vitamin D what dose I should try - maybe 1,000iu day. I don't know if supplementing too high a level is bad if you may not need it.

    How are you getting on with LDN? I think you've been using it for 6 months? (just a guess from previous posts I've seen).

    Hope you're doing well
    Diva

     
  9. oerganix

    oerganix Senior Member

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    I have read studies that show too much vitamin D can cause reabsorption of bone...that is, bone loss or osteoporosis.

    As for Dr Mercola, I've been surfing his site for a long time and I don't trust him or his "studies". Too many of them have come from the supplement manufacturers and been "rewritten" to look like something new and true. Mercola is nutty, IMO. He says microwave ovens poison your food, for example, and other nutty ideas. He's a great marketer. He sells cookware, grass-fed ostrich and a whole lot of other stuff that looks to me like it is marketed to people with more dollars than sense. Most of his "articles" are fear mongering, designed to get the reader to buy stuff from his site. Note the sensational language he uses.
     
  10. Diva55

    Diva55 Member

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    Hi Oerganix
    Many thanks for your opinion on Mercola - I don't keep up with who's good & who's bad on the doctor front. It's so easy to get misled when finding articles on the internet. I get google fever after a while! I tend to reply on message boards with help from "real" people going through the same things as me.

    On balance I still think I should increase my vitamin D for a short period to see if it helps but I won't raise it to huge levels or for a long period.

    I'll be interested to see what the Glasgow LDN conference says about Vit D & LDN - why they recommend it & what doses will be interesting.

    Many thanks to all for their opinions on Vitamin D

    Diva

     
  11. Diva55

    Diva55 Member

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    Tamrakat's story

    Tamrakat replied to my LDN & help with IBS post (In the Gut section) .

    Her story is very encouraging for us on this thread so I thought I would copy it here. I've added the bold to a couple of sections.

    It's also very interesting about the buildup of LDN which I believe someone on this thread had - sorry I can't remember your name offhand.

    I've asked Tamrakat to join this thread.

     
  12. jeffrez

    jeffrez Senior Member

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    I've been on LDN for about 4-5 months, at 3, 4.5, and now 1.5mg. I haven't noticed anything at all, no side effects, no improvements, no anything. I'm starting to think my endorphin system must not be very functional. Someone on the LDN list said it might take even 6 months to see any effects, but that seems to me like a long time for something to work. I had liver enzyme tests and those haven't been elevated, so I guess there's no reason not to finish this last batch for a couple more months and see if it will kick in. But for me the results have been disappointing. The doc who prescribed for me said he has seen it work in some people, and not work in others. So maybe it works for some people, but it seems that there are others it just doesn't help.
     
  13. Diva55

    Diva55 Member

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    Hi Mr. Kite
    I'm sorry to hear LDN has not been working for you.
    I've read too that playing round with your dosage may help but obviously not with you.
    I also read that it can take up to 6 months (or maybe more?) to kick in so I guess if you're not getting any adverse reactions it's worth carrying on.

    Yes the sad news is that it does not work for everyone but we keep our fingers crossed for any treatments that we pursue. I've tried lots of things that have helped some but haven't helped me - we are all so different (and similar) in many ways!

    I hope you are a late developer :sleepy:and it suddenly catches up!. Keep us up to date.
    Best wishes
    Diva
     
  14. leaves

    leaves Senior Member

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    I just started with LDN and I have the feeling that I breathe somewhat easier. Did anyone else notice this?
     
  15. Diva55

    Diva55 Member

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    Hi Leaves
    I've not noticed this but very interesting. However I'm still on a very small dose (0.5ml) so a way to go before I'm up to level most people take.

    In the list of many things helped by LDN one of them is Lung Cancer - I wonder if there's a relation to helping the respiratory system in general. Just thinking outloud.

    What dosage are you taking?

    Please keep us up to date.

    Did you see my post of the LDN pharmacies - I know it's too late as you've already ordered!

    Best wishes
    Diva

     
  16. Cloud

    Cloud Guest

    I wonder how well LDN will be tolerated by xmrv+ folks? Somewhere I read that certain types of Immune support are a bad idea with xmrv. I'm thinking Dr Cheney or Mikovitz.....Need to find it. I see people either raving about how well LDN works, or the opposite and they got very ill.....no middle ground. I wonder if it has to do with xmrv status? Ruminating again, lol. I have never been able to take Immune stimulants. Tried LDN over a decade ago, but was much too sick to discern a difference. May be different now. Happy it is working for some....That's always good to hear.
     
  17. leaves

    leaves Senior Member

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    Well I'm xmrv+ and so far so good. I'm on 2 mg
     
  18. Cloud

    Cloud Guest

    That's great Leaves! How long have you been on LDN? My GP is always trying to give it to me....maybe I need to give it a go. I look forward to a fine tuned tolerable treatment regimine that will suppress xmrv, balance the immune system, and cool the cytokine jets.
     
  19. Jenny

    Jenny Senior Member

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    An update from me -

    Upped the dose to 1mg nearly a week ago. I don't have the euphoric feelings in the morning that I had at the start on 1.5 mg, but I sleep well, and the nausea and lack of appetite have disappeared.

    I've also been feeling better generally - can spend more time out of bed, fluey feelings have lessened and pain is better. I wouldn't necessarily put this down to the LDN as in in past I've always come out of severe relapses after 4 - 6 months anyway and I crashed 6 months ago. I've also been doing quite a lot of other things - started acetyl L carnitine, sodium bicarb, holy basil, krill oil and pancreatic enzymes.

    But at least I'm tolerating it, and if all continues OK will up the dose again in a few days.

    Jenny
     
  20. oerganix

    oerganix Senior Member

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    Maybe it's nitpicking, but those who are researching LDN say it is an immune modulator, not a stimulant per se. They say that it can up-regulate or down-regulate the immune system, depending on what is lacking. If those who think MS is caused by an up-regulated immune system, ie, is an autoimmune disease are right, it seems to be working by quieting the immune system. I mention MS because that is where I have heard the most success stories.

    Having said that, I'm thinking that maybe for those who start LDN and get an up-regulated immune response, maybe the response is too strong to bear. May be that the most sensitive among us need to start low, go slow, and maybe skip days or take breaks. Of course, LDN may also just not be for everyone.

    Leaves, good to hear it's going well for you.

    I've been on 4.5mg but I've dropped back to around 3, as I've had a cold, cough and sore throat like I haven't had in years. I've decided to just take it easy instead of pushing for fast changes. About once a week I just skip a dose. I've gotten in the habit of eating several tablespoons of homemade yogurt right after taking the LDN and that soothes the stomach irritation that seems to come and go with LDN.

    For several days I had dizziness, like sea sickness, unusual for me. The left side only headache came back with the migraine-like visuals but little pain. Those have passed and I feel good today.

    My biggest improvement is in sleep. I'm sleeping well without meds for the first time in decades. That has improved my sense of well being and my mood as well. I'm also feeling more coordinated, less clumsy and disconnected from my body.

    This is my 7th week on LDN.
     

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