1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
The ePatient Revolution
Ryan Prior shares his experience and his thoughts from attending the Stanford Medicine X Conference as he contemplates the rising of the ePatient Revolution ...
Discuss the article on the Forums.

Low Dose Naltrexone - Anyone in the UK?

Discussion in 'Antivirals, Antibiotics and Immune Modulators' started by Diva55, Oct 20, 2009.

  1. Diva55

    Diva55 Member

    Messages:
    164
    Likes:
    3
    UK
    I saw my doctor today & asked about getting a precription for Low dose Naltrexone. He said he couldn't prescribe it as it wasn't licensed in the UK.

    He said if I could find a doctor who was prescribing it in the UK then he may be able to get it that way - don't ask me to explain this as I was in so much pain (the main reason for the visit) that I could barely take in any info.

    He also said he has another couple of patients asking about this - so they might be on this board!!

    I would really appreciate it if anyone could help me out on this as I'm so fed up with Lyrica & want to try LDN as it sounds promising.

    Many thanks
  2. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

    Messages:
    4,044
    Likes:
    885
    Concord, NH
  3. bertiedog

    bertiedog Senior Member

    Messages:
    422
    Likes:
    238
    Hi

    I live in the UK and Dr Myhill (www.drmyhill.co.uk) has prescribed it for me but I have not started it yet. Dr Myhill is a private doctor so does not work for the NHS but it might be worth contacting her office and asking for advice.

    Pam
  4. Diva55

    Diva55 Member

    Messages:
    164
    Likes:
    3
    UK
  5. Diva55

    Diva55 Member

    Messages:
    164
    Likes:
    3
    UK
    LDN doctor

    Hi Pam
    I THINK my doctor said he would be able to get a prescription raised if a private doctor was prescribing it. I know that sounds weird but he usually goes out on a limb for me. He battled the medical council for months to get me Lyrica before it was licensed here.

    Of course I may have heard that all wrong as I wasn't in a fit state to take in info but I'll follow this up with him.

    I thought of Myhill first so that's good she is prescribing it. Can I ask how much you have to pay for it? I'd rather pay the usual NHS 7.40 of course!

    Are you taking LDN for Fibro? Good luck with it & I hope you post your progress on it.

    Best wishes
  6. Min

    Min Senior Member

    Messages:
    1,193
    Likes:
    1,212
    UK
    It costs me 15 a month plus the private prescription is 5 from Dr W in Bolton

    it's posted from a pharmacy in Glasgow

    It can't be taken with opiate painkillers
  7. Diva55

    Diva55 Member

    Messages:
    164
    Likes:
    3
    UK
    Ldn

    Hi Min
    Thanks for that info. That price seems really reasonable although I'd still like the NHS presciption charge!

    I think the chemist you mentioned is Dickson's which has been mentioned in some articles I've read. Seems people in the States are getting it from there as well.

    I still can't work out how my NHS doctor can get round prescribing it when its unlicensed unless he makes a case to the medical council again for me. But by asking me to get this info for him isn't the same way he made a case for me with Lyrica.

    I'll have to speak to him again as I'm sure I got confused with what he was asking.

    How are you getting on with it?

    Best wishes
  8. Min

    Min Senior Member

    Messages:
    1,193
    Likes:
    1,212
    UK
    yes, it's Dicksons - I have the liquid as its cheaper.


    I've just posted elsewhere - I'm in unbearable all over pain even on half the prescribed dose, & can't take the only my Co-proxamol, the only pain killer that works for me, with LDN as it contains opiates.

See more popular forum discussions.

Share This Page