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Low Dose Antigens / Immunotherapy (LDA/LDI) Lyme

Discussion in 'Lyme Disease and Co-Infections' started by Lemnia, Jun 11, 2015.

  1. Lemnia

    Lemnia

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    Can anyone shed light on what they have experienced or know about LDA/LDI in regards to a new technique that seems to be working for so many. I came across this interview with Dr. Ty Vincent in Alaska who seems to be pioneering this form of treatment with remarkable results. This interviewhttps://www.youtube.com/watch?v=__Dnq_0iZGU (start about 25 minutes into recording. It's one of three interviews, all equally compelling) got my attention. I have now contacted the one doctor in London where I am who Dr. Vincent has trained in this approach and made an appointment. I'd like to hear from anyone who has information or can share info on this as it has me quite excited at the prospect of some hope. I have been severely ill for 2.5 years, firstly diagnosed with CFS/Fibromyalgia and then 3 months ago tested positive for Lyme Disease. So for me any ray of light out of this suffering is something I'm looking at!
     
  2. Mary

    Mary Senior Member

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    @Lemnia - I don't know anything about LDA/LDI but it looks very very interesting. My sister has either rheumatoid arthritis or lyme, or rheumatoid lyme - in any event, she's floundering, trying so many different things, trying to avoid the toxic RA drugs.

    Let us know how your appointment goes!

    Best wishes -
     
  3. msf

    msf Senior Member

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    I don't know much about this, but I don't think any Lyme association suggests treating Lyme with LDA/LDI. I would be suspicious of this if they haven't published any papers.
     
  4. Mary

    Mary Senior Member

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    @Lemnia - I just watched the video - it's fascinating. It's an interview with Dr. Ty Vincent, who is in Wasilla Alaska. He says he has successfully treated several autoimmune conditions, including rheumatoid arthritis, with LDA therapy. He considers lyme to be an autoimmune condition - he says the problem is not the pathogens involved, but the body's response to those pathogens. What I was so glad to hear is that he has seen patients via Skype, and mailed them the antigen. I was listening to the video (it's an hour) and getting discouraged because he's in Alaska until he mentioned Skype. So I'm going to pass this on to my sister and may even consider it myself.
     
  5. Mary

    Mary Senior Member

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    Wayne likes this.
  6. Hanna

    Hanna Senior Member

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    @Lemnia , how do you do with your LDI treatment ?
    Please share...
     
  7. GutBuster

    GutBuster

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    Lemnia, we are using Strep and Mycoplasma/ chlamydia pneumonia Ldi with Dr Ty Vincent and seeing results (FIRST real fever!), but early days so will report more in next few weeks. We will do Lyme and inhalants Ldi next. Can you post the ñame of London Dr.? I know someone there keen to start.
     
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  8. Lemnia

    Lemnia

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    Hi, Good to hear you are doing well. I did not feel comfortable staying with the London doctor, we left the £400. consult without confidence in him or the experience he has with this. I then contacted quite a lot of people on Ty Vincent's list of doctors he has trained and I found one in CT willing to treat me via Skype. My consult was on Friday last week and they are shipping me my first Lyme dose of 15c which should arrive next week! Lyme dose first and then the yeast at 15C. I am excited to be on my was to trying it. I will also ask about the Mycoplasma/Chlamydia pneumonia LDI as I tested positive for these. Keep me posted on how you all do and the best of luck to you!
     
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  9. Sushi

    Sushi Senior Member Albuquerque

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  10. Sushi

    Sushi Senior Member Albuquerque

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    P.S. It was a very interesting presentation as the approach is not killing pathogens and environmental toxins such as mold, but working with the immune system so that it doesn't create massive inflammatory responses to them.
     
  11. girlinthesnow

    girlinthesnow Senior Member

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    I had EPD with Dr McEwen in 1995 for multiple food intolerances. It was disastrous, I lost the ability to eat many more foods and have never been able to tolerate them since. I had a bad response to the first treatment, he insisted this was common and I would need to have more doses. I had one more lot, developed migraines and lost more foods. I stopped. It is one of the worst things I have done as it permanently decreased my quality of life.
     
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  12. Gingergrrl

    Gingergrrl Senior Member

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    @girlinthesnow What is EPD and is the the same as LDI or something different? I am a novice to this and still learning all the terms and trying to determine if LDI is something that could potentially help me. But the idea of losing more foods would be disastrous to me as I had severe MCAS which is now fairly well controlled on multiple meds.
     
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  13. girlinthesnow

    girlinthesnow Senior Member

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    Gingergrrl, I think your concerns are justified. Iif you listen to the first few minutes of the link @Sushi posted, Dr Vincent explains that this was the origin of LDI.

    Dr Myhill gives a form of EPD, when I was a patient I told her about my experience. She said it was unusual but not unique. I'd met another of Dr McEwen's patients at his clinic and he'd also had a negative outcome.

    I don't remember Dr McEwen's explanation of how this might occur nor do I know if it's now possible to test for a likely negative outcome. His final recommendation was that I continue to have treatments but I decided against this.
    : http://www.voiceamerica.com/show/2356/the-cutting-edge-of-health-and-wellness-today

    edited to add: Listening again EPD = LDA, not certain LDA = LDI?

    I do think his use of LDI using sterilised stool is very interesting and a treatment I'm investigating.

     
    Last edited: Aug 30, 2015
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  14. Sushi

    Sushi Senior Member Albuquerque

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    No, LDA is quite different from LDI and LDI should avoid the problems people had with EPD.
     
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  15. justy

    justy Donate Advocate Demonstrate

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    Still not convinced that LDI would be safe with MCAD's .

    Breakspear calls there allergy desensitisation programme LDI - low dose immunotherapy where you are given a very small dose of the thing you are allergic to, is this LDI the same thing? it is supposed to train the immune system to accept the allergen.

    If you have MCAD's then you need to avoid your allergens in order to heal, not the other way round. Exposure causes either proliferation of mast cells (and when you have too many, the number stay high, they cant go down again) or increased degranulation. I was horrified to learn Bekapsear suggested I do LDI without finding out if I had MCAD's. in fact I have MCAS and wouldn't touch their version of LDI with a barge pole!

    But, as I cant treat Lyme etc with abx or herbs currently I would like to find an alternative...
     
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  16. justy

    justy Donate Advocate Demonstrate

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    Dr Shrader is still talking about regular LDA, which developed from EPD. sill trying to work pout how this LDI is different...can anyone explain?
     
  17. justy

    justy Donate Advocate Demonstrate

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    From the interview linked to above:

    in which case its another form of EPD, LDA etc. not sure of this is safe in MCAD so I have posted about it on the Mastocytosis FB page I am a member of and will post back here what I learn.
     
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  18. girlinthesnow

    girlinthesnow Senior Member

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    My experience would indicate that it is unsafe for people with MCADs. Listening to the whole recording he seemed a little vague but also less gung-ho about treating gluten disease (coeliac) but was ok about Crohn's. I feel a little queasy about it.
     
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  19. justy

    justy Donate Advocate Demonstrate

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    I just wish I could find a safe treatment...
     
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  20. Sushi

    Sushi Senior Member Albuquerque

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    If you can frame the question, I'll also ask it on the LDI Facebook page.
     
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