Julie Rehmeyer's 'Through the Shadowlands'
Writer Never Give Up talks about Julie Rehmeyer's new book "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand" and shares an interview with Julie ...
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Lost Years

Discussion in 'Advocacy Projects' started by ladycatlover, Apr 30, 2017.

  1. ladycatlover

    ladycatlover Senior Member

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    I've taken part in an art project to try show how many years individuals have lost from their lives due to ME/CFS.


    [​IMG]

    More information on the project on the facebook page. Please take a look.
     
    Azriel, slysaint, rosie26 and 31 others like this.
  2. Matthew Jones

    Matthew Jones Senior Member

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    I've lost 6 and it feels like a lot. It's sad to see how high these numbers are :(
     
  3. Shoshana

    Shoshana Northern USA

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    So precious, and meaningful, and in my opinion, a very good way to demonstrate our losses, and with art and color.

    We are suffering, but we are still alive, some of us, and we are letting the world, and each other, know that we ARE HERE.

    INvisible, no more!

    Thank you for posting this, @ladycatlover
     
  4. ladycatlover

    ladycatlover Senior Member

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    Sorry you've lost 6 years so far. :cry: :hug: Given recent research you may well have a chance of recovery. :)

    This project was started by a dear internet friend, including a number of other internet friends, and then friends of friends, so this is in no way a scientific measure of how long folks are ill. I guess it's more a measure of how people make friends :) and find comfort from them over the web. And so will tend to be bigger numbers... :eek:

    Also the small numbers will never make it to something like this as for most people it takes so long to get a diagnosis. :mad:
     
    Somer, Little Bluestem, MEMum and 8 others like this.
  5. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    This is one of the most moving art projects for ME/CFS I've ever seen. :cry: Thanks for sharing.

    I've shared this on Facebook.
     
    Little Bluestem, MEMum, Jan and 9 others like this.
  6. TiredSam

    TiredSam The wise nematode hibernates

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  7. BruceInOz

    BruceInOz Senior Member

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    My avatar is my clumsy attempt at representing my lost years without freezing a number in time. I was last well in 1994.
     
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  8. ladycatlover

    ladycatlover Senior Member

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    Binkie4, Shoshana and Comet like this.
  9. *GG*

    *GG* Senior Member

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    ladycatlover and SamanthaJ like this.
  10. TiredSam

    TiredSam The wise nematode hibernates

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    Doesn't work for me either.
     
    ladycatlover likes this.
  11. ladycatlover

    ladycatlover Senior Member

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    It doesn't work for me now either. My apologies - I'm really sick at the mo, and probably got it wrong. I'll try again later. Thank you @*GG* and @TiredSam for alerting me to the problem.
     
  12. ladycatlover

    ladycatlover Senior Member

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  13. Shoshana

    Shoshana Northern USA

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    I loved your first avatar, @ladycatlover

    and now, I love this one, you changed to.

    And we will all remember the meaning of this one.

    SO glad you are here, and sharing with us.
     
  14. TiredSam

    TiredSam The wise nematode hibernates

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  15. SamanthaJ

    SamanthaJ Senior Member

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    This is just so brilliant and moving.
     
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  16. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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    So that is where the new avatar came from! It conveys unpleasant information in an attracitve format. Very effective. :thumbsup:
     
    MEMum and ladycatlover like this.
  17. Somer

    Somer

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    Moving and stunning
     
    ladycatlover likes this.
  18. slysaint

    slysaint Senior Member

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  19. ladycatlover

    ladycatlover Senior Member

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    slysaint likes this.

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