Julie Rehmeyer's 'Through the Shadowlands'
Writer Never Give Up talks about Julie Rehmeyer's new book "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand" and shares an interview with Julie ...
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Looking for info on research looking at patient beliefs and outcomes

Discussion in 'General ME/CFS Discussion' started by Orla, Sep 11, 2017.

  1. Orla

    Orla Senior Member

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    Ireland
    Hi Guys, there was a crap interview with a doctor promoting the HPV vaccine on Irish radio this morning, where she totally downplayed the severity of ME. She made a few misleading and incorrect comments. One of them was that she spouted the CBT-line that if patients believe they have a serious underlying disease causing their symptoms that it will lead to a poorer outcome. I am pretty sure that even CBT researchers couldn't prove this, and actually had some research that showed this wasn't the case. But I can't remember the research. If anyone can remember I'd be grateful for some pointers of where to look. It would be good to have some research data to show that beliefs were not the issue.


    Admitedly, the more severe, and actually suffering from ME as opposed to fatigue, patients could have stronger beliefs about the cause of the illness as it is more obvious that it is physical, but I am pretty sure there is research out there that showed beliefs didn't affect outcomes.
     
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  2. Dolphin

    Dolphin Senior Member

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    https://www.researchgate.net/profil...e_syndrome/links/02e7e526ab2fc40787000000.pdf

     
    Valentijn, Hutan, AndyPR and 2 others like this.
  3. Orla

    Orla Senior Member

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    Excellent, thanks. Thinking of writing in to the programme.
     
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  4. trishrhymes

    trishrhymes Senior Member

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    That piece of research is good on the physical illness beliefs bit, but a bit of a double edged sword as one to quote, as it goes on to make crap conclusions about fear avoidance beliefs. I'd be careful quoting this one.
    Sorry, several edits. Brain fog.
     
  5. Orla

    Orla Senior Member

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    Yeah you are right Trish, double-edged sword.
     
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