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Hy everyone!
I’ve been a reader in the forum for many years, but this is the first time I write my own message. English is not my native language so excuse any mistakes. I’m a 30 year female and I’ve probably had ME since I was 15 with a strongly progressive course. I’ve tried to live on my life but for many years I’m being more and more bedridden. Bevor it all started I had multiple root canal infections, long EBV infection, mumps and a very strong HSV outbreak all within two or three years.
Following are my worst symptoms: I have a very severe fatigue, even when I only lie in my bed for days or even weeks and crushes that last for days after only slight exertion, I have sore muscles, my cognition decreases, my vision blurs more and more and often I have double visions. I have an idiopathic hypothyreosis. What differs strongly from what I’ve read about most ME-patients is that I have hypertension and pulse around 100 even when I only lie in my bed and worse when I move. I often have migraine and I have many infections, especially mastits, belt rose and bursitis. Also I have strong temperature intolerance to cold and warm. I always have excessive thirst, so I drink up to 5 litres and still always have a dry throat and mouth.
I live in Switzerland where ME is treated as a matter of psychology which can be healed by simple lifestyle choices of the patients, so I’m without treatment or even access to health care at all. When I see a doctor, he won’t take me serious any after the term ME or CFS falls, even if I went to see him only because a normal inflammation. He will give me some salve, but not without telling me to get up instead of burden the health care system. I’ve not given up yet finding a doctor who takes my symptoms serious, but I haven’t had any success in all the years.
Four years ago I made the tests at the organix labs in the US, but I couldn’t understand all the results and tried the suggested supplements but without any success. I’ve tried to do some research myself and my concentration decreases more and more. I’m not even sure that I have ME, all I know is that my body gets worse and worse and I don’t know where it is going to end. I’m open for alternative diagnosis and I’m desperate for any treatment or symptom reduction, but I’m more and more unable to do research. I wanted to post my results for comparison and interpretation. Is there a special thread or a specific reason not to post lab results (anonymously of course)?
I’ve been a reader in the forum for many years, but this is the first time I write my own message. English is not my native language so excuse any mistakes. I’m a 30 year female and I’ve probably had ME since I was 15 with a strongly progressive course. I’ve tried to live on my life but for many years I’m being more and more bedridden. Bevor it all started I had multiple root canal infections, long EBV infection, mumps and a very strong HSV outbreak all within two or three years.
Following are my worst symptoms: I have a very severe fatigue, even when I only lie in my bed for days or even weeks and crushes that last for days after only slight exertion, I have sore muscles, my cognition decreases, my vision blurs more and more and often I have double visions. I have an idiopathic hypothyreosis. What differs strongly from what I’ve read about most ME-patients is that I have hypertension and pulse around 100 even when I only lie in my bed and worse when I move. I often have migraine and I have many infections, especially mastits, belt rose and bursitis. Also I have strong temperature intolerance to cold and warm. I always have excessive thirst, so I drink up to 5 litres and still always have a dry throat and mouth.
I live in Switzerland where ME is treated as a matter of psychology which can be healed by simple lifestyle choices of the patients, so I’m without treatment or even access to health care at all. When I see a doctor, he won’t take me serious any after the term ME or CFS falls, even if I went to see him only because a normal inflammation. He will give me some salve, but not without telling me to get up instead of burden the health care system. I’ve not given up yet finding a doctor who takes my symptoms serious, but I haven’t had any success in all the years.
Four years ago I made the tests at the organix labs in the US, but I couldn’t understand all the results and tried the suggested supplements but without any success. I’ve tried to do some research myself and my concentration decreases more and more. I’m not even sure that I have ME, all I know is that my body gets worse and worse and I don’t know where it is going to end. I’m open for alternative diagnosis and I’m desperate for any treatment or symptom reduction, but I’m more and more unable to do research. I wanted to post my results for comparison and interpretation. Is there a special thread or a specific reason not to post lab results (anonymously of course)?
