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Looking for East Bay (Bay Area) Fibro/CFS doc

PearlGirl26

Living with CFS for years, recently diagnosed.
Messages
65
Location
CA
My dear friend has recently been diagnosed with Fibro, PTSD, connective tissue disorder and has a history of Lyme, which was treated with 3 weeks of doxy. She also has a terrible sleep disorder involving seizures. I am doing everything I can to help her, but she is being seen by so many doctors. Does anyone have any advice for her on Dr. Levine/Endlander-type doc in SF or the East Bay? I told her about Work Well for when she files for disability, but I would like her seen by someone who gets it, instead of all of these specialists who don't see the big picture. Also, recs on SS disability attorneys are also appreciated!
 

Iquitos

Senior Member
Messages
513
Location
Colorado
Dr Andy Kogelnick is at the Open Medicine Institute, Mountain View. 650-962-4553

I don't know whether they actually accept patients or only do research. They might be able to refer you/her. Good luck!
 

vli

Senior Member
Messages
653
Location
CA
i don't think dr kogelnik sees any new patients(?) but his partner dr kaufman does.
 

PearlGirl26

Living with CFS for years, recently diagnosed.
Messages
65
Location
CA
Thanks guys! Please keep the suggestions coming. I will forward them on to her.