Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Looking for East Bay (Bay Area) Fibro/CFS doc

Discussion in 'ME/CFS Doctors' started by PearlGirl26, Dec 12, 2013.

  1. PearlGirl26

    PearlGirl26 Living with CFS for years, recently diagnosed.

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    CA
    My dear friend has recently been diagnosed with Fibro, PTSD, connective tissue disorder and has a history of Lyme, which was treated with 3 weeks of doxy. She also has a terrible sleep disorder involving seizures. I am doing everything I can to help her, but she is being seen by so many doctors. Does anyone have any advice for her on Dr. Levine/Endlander-type doc in SF or the East Bay? I told her about Work Well for when she files for disability, but I would like her seen by someone who gets it, instead of all of these specialists who don't see the big picture. Also, recs on SS disability attorneys are also appreciated!
     
  2. doug

    doug

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    San Rafael, CA
  3. Iquitos

    Iquitos Senior Member

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    Colorado
    Dr Andy Kogelnick is at the Open Medicine Institute, Mountain View. 650-962-4553

    I don't know whether they actually accept patients or only do research. They might be able to refer you/her. Good luck!
     
  4. vli

    vli

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    i don't think dr kogelnik sees any new patients(?) but his partner dr kaufman does.
     
  5. PearlGirl26

    PearlGirl26 Living with CFS for years, recently diagnosed.

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    CA
    Thanks guys! Please keep the suggestions coming. I will forward them on to her.
     

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