The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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Looking for a dysautonomia + CFS doctor in CA

Discussion in 'ME/CFS Doctors' started by Farmer, Mar 2, 2015.

  1. Farmer

    Farmer

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    Looking for a dysautonomia doctor in CA who is well versed in the intersection of dysautonomia and CFS. Seeking thorough testing, skilled analysis of test data, accurate diagnosis, and effective treatment recommendations which do not include PEM inducing aerobic exercise.

    Tall order? You bet! Who do you know?

    Sent from my iPad
     
  2. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Albuquerque
    Yes, a very tall order! There may not be such a doc. There are some good ME/CFS/SEID docs in CA and there may be one or two dysautonomia docs, but probably not a combo. A dysautonomia doc would probably want you to do a Tilt Table Test which, while not aerobic, can be a huge physical stressor that often causes PEM.

    Best,
    Sushi
     
    Never Give Up likes this.
  3. jeff_w

    jeff_w Senior Member

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    I see Dr. Kaufman at the Open Medicine Institute in the Silicon Valley, CA. He's an expert in CFS/ME and has treated my dysautonomia extremely well. There are no PEM-inducing exercise tests.

    He's taken me from bed-bound and wheelchair-bound to being able to go out a few times a week and never needing a wheelchair.

    Here's a thread I wrote about my experience with him: Dr. Kaufman at the OMI
     
    oceiv and Never Give Up like this.

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