1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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Looking for a doctor in NYC

Discussion in 'ME/CFS Doctors' started by Tiger Lily 813, Feb 27, 2014.

  1. Tiger Lily 813

    Tiger Lily 813 Senior Member

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    Please let me know if you've had a good experience!
    I've heard of Dr. Ehrland, but I cannot pay $750/appt...
    I'm ideally looking for someone who does both holistic and conventional with a good knowledge of CFS/ME/Lyme/Candida/Methylation/Mitochondrial dysfunction/etc...
    Much appreciated : )!!
     
  2. I recently went to Dr. Enlander. Based on my experiences, I'm looking into finding another doctor, but he is based in NY.
     
  3. Aerose91

    Aerose91 Senior Member

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    @sparklehoof

    I've been seeing Dr Enlander as well but am looking to find a new M.E. doctor. I live in CT but will travel a bit. Have you found anyone? Dr Enlander is just too cookie-cutter for me.
     
  4. Tiger Lily 813

    Tiger Lily 813 Senior Member

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    I am still going through some testing with my doctor to find out if lyme or mold are more of the cause for me, but I am wanting to go to two doctors that you might want to look up:
    Dr. Claudia Cooke-
    NYC, sounds amazing, she is a LLMD as I got the reference from ILADS, but she seems to specialize generally in a long list of chronic, hard-to-treat conditions. She is not cheap, but apparently cheaper than Dr. Enlander.
    Nancy Guberti-
    A naturopath with extensive experience in treating toxic illnesses. She is in Connecticut, but will also Skype. It seems her expertise is on toxic illness, liver conditions, lyme, autism, etc. She has radio shows on her website that I've been listening to at work and I would really like her opinion on my case.
     
  5. How are you feeling? Thank you so much- I'll look into them.
     
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  6. Tiger Lily 813

    Tiger Lily 813 Senior Member

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    I'm also looking into the Morrison center; my CFIDS/adrenal fatigue also has a lyme and (possibly) mold origin, so I've been researching more people who were helpful with Lyme lately. Please let me know if anyone has heard about them... Thanks!
     
  7. I wish I could help, but I hadn't even heard of them. Let me know how you make out. I haven't been on the dr/tx search for the last cpl wks.
     
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  8. Daffodil

    Daffodil Senior Member

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    dr. leo galland is very good but expensive and does not take insurance. I had a very bad experience with dr. susan Levine but some people seem to like her. she takes insurance.
     
  9. Tiger Lily 813

    Tiger Lily 813 Senior Member

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    They are ALL expensive. I have come to expect that is how it has to be- especially for chronic lyme because it's controversial therefore doctors who agree to treat it do not want to be too involved with the insurance companies.
     
  10. Aerose91

    Aerose91 Senior Member

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    I tried to get in to see Dr Galland but he is extraordinarily expensive. $1150 for 1 hour not including lab tests and follow ups are $450 for 45 minutes. The president doesn't even make that much
     
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  11. Tiger Lily 813

    Tiger Lily 813 Senior Member

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    Holy cannoli! Now that tops all that I've looked into in the city! He must have SOME secrets!!
     
  12. Tiger Lily 813

    Tiger Lily 813 Senior Member

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    I feel like the standard that I am hearing is around 600-700 which is still terrible but 1150 whoa!!
     
  13. Aerose91

    Aerose91 Senior Member

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    Everyone I've seen has been within the 450-750 range, that's before lab tests tho. Yah Dr galland is highway robbery- it's apparent some people aren't in it for the sake of helping people
     
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  14. Daffodil

    Daffodil Senior Member

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    wow dr. galland's new patient price has gone up. but the phone consults were like $350 for 20 minutes I think...so its better to see him in person!

    I really like him. he is very thorough and easy to talk to. unlike a lot of the cheaper doctors, he focuses on you when you are with him.

    sadly, I stopped being able to afford him a long time ago. also, despite all the testing, he couldn't find what was wrong with me. still really like the guy, though....he tried hard to help me.
     
    Tiger Lily 813 likes this.
  15. Tiger Lily 813

    Tiger Lily 813 Senior Member

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    Went to Dr. Moreno at the Morrison Center and although it was just the first appt so, early to say for sure what my ultimate review will be, I was really pleased thus far with the knowledge of my conditions. This is where I have decided to continue for the time being. I will update once I've had more done there!
     
  16. Uno

    Uno Senior Member

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    Brighton, United Kingdom
    Dr Jesse Stoff at Lichniz Wellness Center
     

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