A New Decade of ME Research: The 11th Invest in ME International ME Conference 2016
Mark Berry presents the first in a series of articles on the 11th Invest in ME International ME Conference in London ...
Discuss the article on the Forums.

Looking for a cheaper source of ketotifen

Discussion in 'Mast Cell Disorders/Mastocytosis' started by bspg, Aug 29, 2017.

  1. bspg

    bspg Plant Queen

    Messages:
    404
    Likes:
    1,464
    USA
    I've been taking 1mg ketotifen twice daily and my doctor wants to increase my dose to 2mg twice daily.

    I'm okay with this but it's going to cost me $180/month through my current compounding pharmacy, which I cannot afford.

    Does anyone have a cheaper source of ketotifen? Feel free to PM if you don't want to share publicly.
     
    leela likes this.
  2. Philipp

    Philipp

    Messages:
    75
    Likes:
    489
    I would be surprised if this was an option for you, but german online pharmacies want ~20€ ($25) for 100x1mg (so roughly $30/month for 4mg/day). You have to have a prescription to order it though and as far as I am aware they only ship to Germany. I am mentioning it because... why in the world does it cost you 6 times as much!?
     
    leela and bspg like this.
  3. bspg

    bspg Plant Queen

    Messages:
    404
    Likes:
    1,464
    USA
    @Philipp because, America. :(:(:(
     
    leela likes this.
  4. bspg

    bspg Plant Queen

    Messages:
    404
    Likes:
    1,464
    USA
    @Philipp do you have any links I could look at? Maybe there are some who do ship to the states?
     
    leela likes this.
  5. Philipp

    Philipp

    Messages:
    75
    Likes:
    489
    I don't think that will help you at all, but https://www.besamex.de/ technically carries it and https://www.docmorris.de/ketotifen-stada-1-mg-hartkapseln/03989425?sc=PKV (technically from the Netherlands) does as well (supplier is STADAPHARM both times). If you need a prescription to order you are usually out of luck, laws in that area this tend to be pretty strict.

    But maybe someone else knows a loophole or some option that is at least, well... roughly on your half of the world ;(

    edit: http://forums.phoenixrising.me/index.php?threads/im-in-love-with-ketotifen.46548/ @Gingergrrl apparently paid $61/month for an unknown dosage as of last year, so maybe you can at least find a cheaper compounding pharmacy if you are lucky, and there may be a bit of a loophole via canada which I hope someone else can tell you about...
     
    Last edited: Aug 29, 2017
    bspg likes this.
  6. Hip

    Hip Senior Member

    Messages:
    9,366
    Likes:
    14,722
  7. bspg

    bspg Plant Queen

    Messages:
    404
    Likes:
    1,464
    USA
    Thank you, @Hip! :)
     
    Hip likes this.
  8. Gingergrrl

    Gingergrrl Senior Member

    Messages:
    9,408
    Likes:
    24,312
    USA
    My compounding pharm is $60 for one months worth which for me equals 4 mg per day (even though I take a lower dose at present). It's still expensive but I think it would be less than what you are paying if I am calculating it right! I have no idea if they ship out of state but can give you the info via PM if you still need it.
     
    bspg likes this.
  9. bspg

    bspg Plant Queen

    Messages:
    404
    Likes:
    1,464
    USA
    Thanks @Gingergrrl! I'm reviewing all options at this point so if you wouldn't mind sharing the name via PM, I would very much appreciate it :)
     
    Gingergrrl likes this.
  10. Gingergrrl

    Gingergrrl Senior Member

    Messages:
    9,408
    Likes:
    24,312
    USA
    Will send you the info shortly.
     
    bspg likes this.

See more popular forum discussions.

Share This Page