I know this is the you-dont-look-like-you're-sick illness, but I look bad. Strangers stare at me and if I happen to go to a hospital to visit someone the nurses stare and stare without looking away. It took me a bit to get used to, especially when friends give me a look and look away, I think, are they mad at me?
Today I was friendly with the cashier until he looked at me when he handed me my receipt and he gave me this look like he was disgusted with me and I realized, oh, yeah, it's only because of how I look.
And I like it. I mean, I have some pride but this illness takes you to other levels of existence and importance. What's important is that I have validation for how I feel with healthy people who don't understand that the 'guts' of a person are on the inside, only the skin is on the outside and this ain't no skin disease.
Once a friend overheard me asking my husband how I look and when he said, 'BAD!' they scolded him. He had to tell them I'm not upset by it. And I had to tell them I want to hear the truth but what I really meant is, I like to hear it so people know I'm really sick.
My only thing is, I'm not as sick as some others (yet) and maybe they need to look bad more than I do. But at least I can tell people I have ME/CFIDs/CFS so they can see me and see sickness.
Anyone else look sick?
Today I was friendly with the cashier until he looked at me when he handed me my receipt and he gave me this look like he was disgusted with me and I realized, oh, yeah, it's only because of how I look.
And I like it. I mean, I have some pride but this illness takes you to other levels of existence and importance. What's important is that I have validation for how I feel with healthy people who don't understand that the 'guts' of a person are on the inside, only the skin is on the outside and this ain't no skin disease.
Once a friend overheard me asking my husband how I look and when he said, 'BAD!' they scolded him. He had to tell them I'm not upset by it. And I had to tell them I want to hear the truth but what I really meant is, I like to hear it so people know I'm really sick.
My only thing is, I'm not as sick as some others (yet) and maybe they need to look bad more than I do. But at least I can tell people I have ME/CFIDs/CFS so they can see me and see sickness.
Anyone else look sick?