Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Longitudinal study of physical activity & BMI among persons with unexplained CF -2005

Discussion in 'Latest ME/CFS Research' started by Dolphin, Aug 18, 2011.

  1. Dolphin

    Dolphin Senior Member

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    93% of the patients in this study actually had CFS. It's disappointing they didn't simply use their data and make it a CFS paper

    This isn't particularly exciting but I just read it and thought I'd post the info somewhere.

     
  2. Dolphin

    Dolphin Senior Member

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    Aside - interesting given the PACE Trial authors to claim scores of 60+ were in the normal range:
     
  3. Dolphin

    Dolphin Senior Member

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    This isn't clear at all from Table 1 but presumably is to do with missing values.
    They give little figures of the progression of every patient - one figure when the BMI went up and one when it went down. Not particularly exciting but there is only one big change: one person's BMI went from just under 45 to around 30: I'm guessing they either went on a brilliant diet or else had some sort of surgery.

    The change in BMI probably isn't that interesting as they later say:
     
  4. Dolphin

    Dolphin Senior Member

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    What attracted me to this paper was that they said it disproved the deconditioning there.

    Here's what they found on this:
    (energy expenditure was not measured objectively but using a questionnaire asking about activity levels)

     
  5. Dolphin

    Dolphin Senior Member

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    BMI
    and
    There is some speculative stuff in the paper e.g. gaining weight is bad, people should try to lose weight and exercise programs might help as they have shown to work, but I can't copy everything and I'm not sure there's anything too conclusive in this paper anyway.
     

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