1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Ergonomics and ME/CFS: Have You Hurt Yourself Without Knowing It?
Having a chronic illness like ME/CFS can make it hard to avoid problems that come from bad ergonomics. Jody Smith has learned some lessons the hard way ...
Discuss the article on the Forums.

Long QT syndrome

Discussion in 'Autonomic, Cardiovascular, and Respiratory' started by lizw118, Jul 24, 2011.

  1. lizw118

    lizw118 Senior Member

    Messages:
    286
    Likes:
    32
    Hi everyone
    My autonomic function doctor told me have a signs of long QT on an EKG. She said this could be due to medication but she wants to take more tests. I am on antidepressants which might make the long QT worse, I guess. Does anyone know about this condition? I have POTS, and I am wondering if the two are related.
    Should I be worried about this? Does this make exercise or surgery a risk?
    Thanks
    Liz
     
  2. LaurelW

    LaurelW Senior Member

    Messages:
    552
    Likes:
    92
    Utah
    My mom, who has CFS and is in her early 80s, has had this. It can be caused by the CFS without any other contributing factors. Heart arrhythmias are common in CFS, and nobody has really studied it except Dr. Cheney.
     
  3. ahimsa

    ahimsa Senior Member

    Messages:
    1,082
    Likes:
    989
    Oregon, USA
    I happened to see a TV show on Long QT Syndrome, part of an ongoing series called Second Opinion. Here's a link to their web site:

    http://secondopinion-tv.org/episode/long-qt-syndrome

    I didn't see the whole show, so I don't know how useful it will be to you, but I hope this is helpful!
     
  4. lizw118

    lizw118 Senior Member

    Messages:
    286
    Likes:
    32
    Thanks. I watched the clip and it was helpful. Hmmm, long QT syndrome sounds bad.
    Liz
     
  5. ahimsa

    ahimsa Senior Member

    Messages:
    1,082
    Likes:
    989
    Oregon, USA
    If you have it then, yes, I do think it can be dangerous in certain situations. On the other hand, I think I remember that the TV show said that ECGs can be misleading at times. It's good that your doctor is going to do more tests to see whether this is actually a problem for you.

    I hope you don't have it, but, if you do, then I hope you can manage the condition. If it is caused by a certain medication, for example, then perhaps getting off that particular medication can reverse the condition?

    Sending you :hug: HUGS :hug: and wishing you all the best.
     

See more popular forum discussions.

Share This Page