Long QT syndrome

[lizw118]

Hi everyone
My autonomic function doctor told me have a signs of long QT on an EKG. She said this could be due to medication but she wants to take more tests. I am on antidepressants which might make the long QT worse, I guess. Does anyone know about this condition? I have POTS, and I am wondering if the two are related.
Should I be worried about this? Does this make exercise or surgery a risk?
Thanks
Liz

 

[LaurelW]

My mom, who has CFS and is in her early 80s, has had this. It can be caused by the CFS without any other contributing factors. Heart arrhythmias are common in CFS, and nobody has really studied it except Dr. Cheney.

 

[ahimsa]

I happened to see a TV show on Long QT Syndrome, part of an ongoing series called Second Opinion. Here's a link to their web site:

http://secondopinion-tv.org/episode/long-qt-syndrome

I didn't see the whole show, so I don't know how useful it will be to you, but I hope this is helpful!

 

[lizw118]

I happened to see a TV show on Long QT Syndrome, part of an ongoing series called Second Opinion. Here's a link to their web site:

http://secondopinion-tv.org/episode/long-qt-syndrome

I didn't see the whole show, so I don't know how useful it will be to you, but I hope this is helpful!

Thanks. I watched the clip and it was helpful. Hmmm, long QT syndrome sounds bad.
Liz

 

[ahimsa]

Thanks. I watched the clip and it was helpful. Hmmm, long QT syndrome sounds bad.

If you have it then, yes, I do think it can be dangerous in certain situations. On the other hand, I think I remember that the TV show said that ECGs can be misleading at times. It's good that your doctor is going to do more tests to see whether this is actually a problem for you.

I hope you don't have it, but, if you do, then I hope you can manage the condition. If it is caused by a certain medication, for example, then perhaps getting off that particular medication can reverse the condition?

Sending you HUGS and wishing you all the best.