Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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lobbying on 21st Century Cures Act

Discussion in 'Advocacy Projects' started by searcher, Jul 18, 2015.

  1. searcher


    SF Bay Area
    The 21st Century Cures Act has just passed the House and moving to the Senate. This is a chance to add funding for ME similar to what has been added for tick-borne diseases.

    I just wanted to write a quick post to see if there is anyone lobbying for ME patients in Congress. I am 99.9% certain the answer is no, but I wanted to confirm. @Nielk- is ME Advocacy doing any lobbying on this Act? Anyone else aware of any initiatives?

    Thanks all.
    Sushi, voner, aimossy and 3 others like this.

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