1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
The ePatient Revolution
Ryan Prior shares his experience and his thoughts from attending the Stanford Medicine X Conference as he contemplates the rising of the ePatient Revolution ...
Discuss the article on the Forums.

Lo/Alter/Gill NIH VideoCast, Chronic Fatigue Syndrome: Is There a Virus?

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by ixchelkali, Jan 26, 2011.

  1. ixchelkali

    ixchelkali Senior Member

    Messages:
    1,105
    Likes:
    266
    Long Beach, CA
    The NIH Demystifying Medicine series will air a videocast on ME/CFS on February 22 at 4:00pm Eastern Time. The title is "Chronic Fatigue Syndrome: Is There a Virus?" The authors of the presentation are Shyh-Ching Lo (FDA), Fred Gill (NIDDK) and Harvey Alter (NIDDK).

    Here's the link for more info: http://videocast.nih.gov/summary.asp?live=9925

    It looks as though you need to pre-register via http://demystifyingmedicine.od.nih.gov/

    Save the date!

    (Sorry if this has already been posted; I did a search and didn't find it.)
     
  2. Esther12

    Esther12 Senior Member

    Messages:
    5,369
    Likes:
    5,848
    Thanks for noting this. Looks interesting.
     
  3. sensing progress

    sensing progress Senior Member

    Messages:
    296
    Likes:
    9
    Tucson, AZ
    I can't wait for this! Dr. Alter has become a hero of mine. I hope he and Dr. Lo will have some new data to present.

    Also, I was not familiar with the name Fred Gill, but a quick google search revealed that he has been an infectious disease doctor treating Laura Hillenbrand in the past.
     
  4. sensing progress

    sensing progress Senior Member

    Messages:
    296
    Likes:
    9
    Tucson, AZ
    I am surprised there isn't more excitement about this. I for one have the date circled on my calendar!
     
  5. Cort

    Cort Phoenix Rising Founder

    Messages:
    7,025
    Likes:
    441
    Raleigh, NC
    I'm surprised too. I did post it earlier but it didn't get many comments. I imagine they could say something about where their studies are right now...that's what I'm hoping.
     
  6. SOC

    SOC Senior Member

    Messages:
    5,364
    Likes:
    6,444
    USA
    Many people read the thread, so most of them did the same thing I did, marked the calendar and sat back to wait for the event. I'm excited, too, but I can' think of much to say about the videocast, yet. :sofa:
     
  7. August59

    August59 Daughters High School Graduation

    Messages:
    1,480
    Likes:
    407
    Upstate SC, USA
    I have it circled and an alarm set in my old PDA. I think most peole are thinking "I wish this was tomorrow!!!". Could they possibly drop a BOMBSHELL???? What is the general capacity of these videocast?

    I'm making a prediction - Dr. Alter/LoGill have fullt sequenced the virus previously found and/or has isolated the virus fully (both ends/sides) intergrated into human DNA!!

    The whole "videocast" (I'm presuming fully recorded) presentation could possibly be a great way to present a paper/study. The plus side is that it does not have to go through peer-review (??) and possiblt sit in wait for months waiting to be published. I personally think Dr. Alter is still pissed about his first paper being delayed and wants to put some minds to rest in his own words. I'm just saying!
     
  8. sensing progress

    sensing progress Senior Member

    Messages:
    296
    Likes:
    9
    Tucson, AZ
    That would be really something but I don't want to get my hopes up. I just feel privileged/excited to get to see Dr. Alter et al speak about our illness, for 2 hours no less! Dr. Alter is my hero.
     
  9. August59

    August59 Daughters High School Graduation

    Messages:
    1,480
    Likes:
    407
    Upstate SC, USA
    It was one of those moments of wishful thinking!
     
  10. Francelle

    Francelle Senior Member

    Messages:
    444
    Likes:
    15
    Victoria, Australia
    More tantalising carrots. Three and a bit weeks.......more waiting - always waiting, waiting, waiting for the next glimmer of information or hope!

    It occurs to me though that they cannot reveal anything that hasn't yet been published - can they?
     
  11. Bob

    Bob

    Messages:
    8,791
    Likes:
    12,103
    South of England
    Yep, that's exactly what I did... I marked my calender!
     
  12. urbantravels

    urbantravels disjecta membra

    Messages:
    1,333
    Likes:
    507
    Los Angeles, CA
    I really want to know in advance what they're going to say, as I'd love to share the link with a few infectious disease doctors of my acquaintance - the ones who were so eager to "educate" me about how ME/CFS is not an infectious illness and about how it *couldn't* be an infectious illness.

    But I know a doctor isn't going to sit down during his/her busy day and watch a webcast like this, so I wonder if transcripts/notes will be available afterward? It appears there will be video archived for later viewing. Hell, I'd transcribe the thing myself, just for the pleasure of educating doctors who haven't gotten a single new memo on ME/CFS since the Stephen Straus days.
     
  13. Forebearance

    Forebearance Senior Member

    Messages:
    395
    Likes:
    115
    Great Plains, US
    I'm excited about this lecture, but also puzzled.
    Why didn't I get an e-mail about it, since I went to the trouble of signing up for the NIH Listserve?
     
  14. eric_s

    eric_s Senior Member

    Messages:
    1,925
    Likes:
    73
    Switzerland/Spain (Valencia)
    Good question... Maybe because we are not the targeted audience? Or it will come later?

    I was also excited to read about it but for whatever reason i never commented. What could you say much before you have seen it...
     
  15. ixchelkali

    ixchelkali Senior Member

    Messages:
    1,105
    Likes:
    266
    Long Beach, CA
    eric_s is right, we aren't the target audience. It's part of an online course that is "primarily directed toward Ph.D. students, fellows, and staff, it is also of interest to medical students and clinicians." I'm glad they're trying to bring that audience up to speed.

    If we start discussing it now, we're going to drive those people who dislike speculation right up the wall! :D
     
  16. sensing progress

    sensing progress Senior Member

    Messages:
    296
    Likes:
    9
    Tucson, AZ
    "This Videocast has been designated NIH Only. You are not authorized to view this event from this network. Please refer to this FAQ"

    Dang it!!!!

    Hopefully they will let the public view the recording when it's posted at least. Maybe we need to contact someone over there?
     
  17. eric_s

    eric_s Senior Member

    Messages:
    1,925
    Likes:
    73
    Switzerland/Spain (Valencia)
    Yes, what a shame. They didn't mention this in advance. They're really not making things easier for us.
     
  18. Forebearance

    Forebearance Senior Member

    Messages:
    395
    Likes:
    115
    Great Plains, US
    Yes, rats. I couldn't watch it, either.
     
  19. August59

    August59 Daughters High School Graduation

    Messages:
    1,480
    Likes:
    407
    Upstate SC, USA
    I pre-registered a couple of weeks ago and I thought it was accepted, but it must not have been because I'm locked out too! It looks like some of the members are watching though
     
  20. August59

    August59 Daughters High School Graduation

    Messages:
    1,480
    Likes:
    407
    Upstate SC, USA
    This was not NIH only when I registered and just sent a strong email about changing this without notification. I registered without any problems at all
     

See more popular forum discussions.

Share This Page